@heytheretatay: It took less than one month of visits to a quality primary care physician and then a rheumatologist to arrive at an autoimmune diagnosis. I do consider that pretty dang lucky #behcetsdisease

Sarah
Sarah
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Thursday 15 January 2026 18:40:28 GMT
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sophscock
sophscock :
my OBGYN caught it - was diagnosed the second I went to the rheumatologist. all because she recognized it from studying it in med school!
2026-03-12 19:51:38
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nancydesir
Nancy :
Hi! Ive been to I've been sickly for years. Sickness recently got worse. Went to two different top hospital Dermatology- Mount sinai and NYU for lesions; one told me pretty much not to worry about it and the other said it was bug bites. Went to my new awesome PCP who took one good look at my fingers/hands lesions and said its looks Vascular related. My new Dermatologist wants me to talk to my rheumatologist about possible behcet's disease diagnosis and labs, especially since I have all the symptoms.
2026-07-15 00:14:52
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tbrewz
Tiffany Brewer :
So glad you were able to get answers! Autoimmune diseases are so hard to diagnose. I think I was only take seriously because I have a strong history of auto immune disease in my family. Currently diagnosed with UCTD with symptoms of both RA and lupus.
2026-01-15 19:56:19
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katherinedo03_
katie :
do you have any tips on where to start with getting seen with symptoms?
2026-05-04 23:39:03
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therealjosalyn
Therealjosalyn :
I was diagnosed with it about 10 years ago!
2026-02-28 01:00:50
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natvanstreep
tash :
Would you mind sharing which rheum you went to? I’m looking at potentially switching and would love to have a great reference in Austin!
2026-01-15 20:47:17
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jazzywazzy1115
jazzywazzy1115 :
That's so fortunate and I wish it was always like that. I spent 8 years being passed around from doctor to doctor before I got my behcets diagnosis.
2026-03-12 17:39:29
1
drayeshalala
Dr Ayesha :
Sending you love autoimmune diseases are rubbish!! But that’s a bloody good doctor, love that for you
2026-01-15 23:36:04
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