Honor | Mum of Three
Region: GB
Monday 19 January 2026 13:20:35 GMT
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Pinkwarrior :
Did they test for Hypochondraplasia as well?
2026-01-19 21:27:54
5
Jade Leoni Boyd :
my son is 13 this year and he was diagnosed with his condition last year. it's a new condition and rare at the moment, so rare it doesn't even have a name just letters and numbers. there is a boy in America who looks so similar to my son who is also diagnosed. there is a fabulous Facebook group called SWAN (syndromes without a name) for children who have had genetic testing and haven't found an answer.
2026-01-19 18:13:35
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Britta :
not having the answer in the worst I get it, she's super cute 🩷
2026-01-19 13:29:39
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Mummabosslady :
The fear of the unknown is quite a scary thing. She’s a sweet beautiful baby. Keep up the good work, Momma 🎀
2026-01-19 17:04:24
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Claire Hayward :
Have you joined SWAN UK? My son has an undiagnosed genetic condition and it's so helpful to be among people who get it.
2026-01-19 21:21:24
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Shelly Johnson :
She is absolutely gorgeous!
2026-01-19 16:49:16
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Nichole Hobart :
she is adorable 😍 shes like mom shhh I'm trying to sleep 😴🥰
2026-01-19 14:18:26
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Christi & Rhett 🐕🦺 :
I have a medically complex Dx. It took decades to get answers. There is grief in hearing, “it’s not this.” Not because I wanted it to be a specific Dx but because it would have been the end of the search and the beginning of appropriate support. Your feelings are valid. I hope you find answers soon. Much love. 💜
2026-01-20 06:11:16
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alicecary352 :
Let me just remind you that YOU are doing so well too. Motherhood is no easy gig, even in the most straightforward of circumstances. Your strength, and your bond with your beautiful girl are both so visible in this video 🤍💖 hoping you get the answers you deserve, soon.
2026-01-20 09:51:19
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Em :
Just to provide a little reassurance, this is such a normal response! A known certainty, no matter how awful that certainty is, often feels more ‘containing’ than an unknown. Hoping you and sweet bubba get answers soon! 🤍
2026-01-19 21:06:51
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neajce :
I couldn’t take my eyes off how absolutely perfect and gorgeous she is!! So beautiful. Congratulations. 🥰
2026-01-27 07:40:50
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🇵🇸Jennifer Armerding🇵🇸🕊️ :
You’re approaching this really well, imho. Realistic. Honest. Seeking out and relying on support. When my kids were little there was no genetic testing. Often the ‘answer’ was ‘global delay’. You ended up just addressing any symptoms in separate clinics and specialties.
2026-01-19 20:48:29
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tracysullivan51 :
My son has a rare genetic disease. He was about 6 when we started suspecting something. It took a year and a half to finally get answers. The waiting is always the hardest part. I'll pray for your family. Keep up the positive spirit, you're doing wonderful.
2026-01-19 14:50:10
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ladoracooper8 :
She is a beautiful baby! I hope you get answers soon.
2026-01-19 15:43:11
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Rebecca Newton-Warren :
She is just a sweet little nugget though isn't she ❤❤❤☺❤❤❤
2026-01-20 08:43:36
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my baby kitten :
your baby is really lovely
2026-01-23 03:59:22
3
Kaz :
she is beautiful 🩷
2026-02-01 23:41:12
1
Harry 🦖 :
Have they not talked you about full genome sequencing? We joined lots of groups thinking our son had OI and he definitely showed a lot those symptoms but he had so many other issues and the tests always came back negative. He got diagnosed with NBAS at 10 years, it was such a relief to finally get a diagnosis. Xx
2026-01-19 19:41:54
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🦋Carole-Ann🦋 :
She’s so pretty! 💕 xx
2026-01-19 14:50:00
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Julie Hall :
And she’s gorgeous 💕
2026-01-19 21:52:41
2
annmariecataldo :
She’s Precious
2026-01-20 23:53:09
1
Bree :
She’s beautiful
2026-01-19 18:28:41
2
Louise Bullock170 :
I hope you get answers. Xxx
2026-01-19 17:06:21
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Kari LJ :
can I please asked what prompted you to get these tests done? does she have some differences? xx
2026-02-12 18:15:29
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Sara Wheeler William :
Sending you hugs she is adorable
2026-01-19 15:40:22
4
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