@mirandaxhow: My daughters medical journey ❤️‍🩹 Brain MRIs, Surgeries & swallow studies so far 🫂 #chronicallyill #medicalmom #medicaljourney #surgery #brainmri

Miranda | medical mama life
Miranda | medical mama life
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Region: US
Monday 19 January 2026 23:40:47 GMT
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jessiebell399
jessiebell399 :
Hi! I have been diagnosed with Chiari malformation since I was 7! Now I’m 29, married, and a successful teacher! The swallowing issue is classic symptom and I still suffer from it!
2026-01-21 03:44:29
47
racheygreer
Rachel Greer :
If her issues are chronic congestion and lung/breatbing issues they need to do genetic testing for primary ciliary dyskensia (PCD). I see you mentioned she had breathing issues at birth which is also a marker for that chronic illness. A lot of doctors do not know about it because it is so rare. Of course, she likely doesn’t have it but may be worth checking.
2026-01-20 03:24:54
74
chey_chey1718
Chey :
I’m so sorry mama. No one should have to go thru this. Stay strong. Your doing great🫶🏻
2026-01-20 00:00:53
383
han.garo
han.garo :
Thank goodness you’re her mama and advocating for her. Us parents KNOW when something is wrong. Hoping all of your questions get answered soon 💙💙
2026-01-20 02:01:49
162
differenttypalove
JustDifferent :
Thank God for Cincinnati hospital
2026-01-21 00:45:24
33
lilliana.machet
Lilliana matchet :
I had similar issues when I was young turned out to be ehlers danlos syndrome and its comorbidities
2026-01-20 09:47:25
7
__itsmary____
mars🪐 :
im so sorry guys, i have chiari as well ❤❤
2026-01-20 09:40:56
68
kickerdiva
Kicker_Diva :
As a former 23 weeker NICU baby, please keep advocating forever! I’m almost 23 years old and my mama is still my amazing advocate! I hope you guys get the answers soon! Medical Gaslighting sucks!
2026-01-20 04:08:46
7
rebeccalea94
Rebecca Lea Turner :
I love your content, you have helped me fight for my son health. Your an amazing mumma.
2026-01-20 01:39:49
5
auntmalinda
Malinda :
Your instincts from when she was in the womb and top notch. You know your child better than anyone else. NEVER stop advocating for her.
2026-01-21 00:11:01
12
liyana.485
Liyana :
A mother always knows her child the best. I love how you fought for yours ❤️
2026-01-30 22:03:06
4
shanae_alex
Shanae ✈️📸 :
Good on you for advocating for your baby mama 💕sending you love
2026-02-02 02:38:31
3
pgagolfhead
pgagolfhead :
Geneticist.
2026-01-20 20:48:38
1
itsxmeg0
𝐌𝐞𝐠 :
I HOPE SHE HEALSS❤️
2026-01-20 21:43:03
0
jgoldman86
Jgoldman86 :
Seek out in immunologist!
2026-01-20 20:22:01
8
6..16.10
addi paige :
I have chiari too!! I got the decompression surgery at 16 months old, that surgery quite literally saved my life. Your daughter is so incredibly strong 💜💜
2026-02-04 20:39:05
3
mayleeperkins
MayLeespamm🥥🥥🥥 :
Dear heavenly father my you help with sick child to help her to be a kid and play god please help her help her mom her dad and her family be strong during this difficult times in the name of Jesus Christ, amen
2026-01-20 23:56:27
5
theskinnierwh0re
camille :
i LOVe cincinnati children’s
2026-01-21 02:25:01
4
user_41180
User_41180 :
Have you checked your home for mold?
2026-02-28 00:46:25
0
emerson.h22
Emerson🌺🌴🌊 :
I also experienced this but it was called rhino virus I was in and out of the hospital multiple times
2026-02-03 12:29:38
0
mousie90
Marissa ✝️✝️✝️ :
I spent most of my childhood in and out of Cincinnati childrens between my diabetes diagnosis at 10 and my brother being born critically Ill I know that place like the back of my hand and I LOVE THAT HOSPITAL they're amazing and lovely
2026-02-07 02:20:23
0
username0173691
W :
Praying for her! 🩷
2026-02-05 06:44:14
0
andthentheres_cierra
And then there’s Cierra :
Same with my baby. OMG I got gas lit for 3 years and finally an ENT fixed everything. He used to be sick every month with a respiratory infection. Keeping fighting!
2026-02-15 13:50:17
0
antonio.mendez9050
Antonio Mendez :
I feel so bad
2026-06-18 17:10:30
0
mummal90
mummaL90 :
Well done mumma! 💕
2026-01-20 21:57:59
0
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