Dr. Rubin, MD
Region: US
Tuesday 20 January 2026 01:11:18 GMT
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Maya Bee :
The gastroparesis concerns me. I also haven’t heard much about the side effects (the bad ones) of gLp1. I’m curious.
2026-01-20 03:17:03
169
nokechic07 :
The inflammation reduction alone 😭
2026-01-20 03:43:39
739
NotUnicorse :
Dysautonomia International is wanting to do research on how GLP1 helps dysautonomia such as POTS!
2026-01-20 01:36:19
674
quitecontrarymerry :
I’m off almost all of my MCAS meds since starting a GLP-1.
2026-01-20 13:33:59
733
Ray & Stormi 🏳️🌈| dog nerd :
I’m in a clinical trial now with a glp 1 for long covid
2026-01-20 01:32:00
856
George Cat and his Bros :
I was able to go off methotrexate for lupus since starting Zepbound. My lupus is in remission.
2026-01-20 04:38:57
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courtney🌄📸🏕️ :
I have hEDS, Dysautonomia, CFS& MCAS (all post long covid) as well as PCOS &insulin resistance. GLP1 did not help me in any way, if anything I felt worse on GLP1! it worsened my CFS and dysautonomia severely to a point of not being able to function or exert myself in the slightest bit. I also didn’t lost weight on it but lost appetite and couldn’t eat anything. Glad it works for many people but it unfortunately won’t work for everyone.
2026-01-20 03:02:10
132
Deb Donovan :
A GLP has definitely helped reduce my MCAS symptoms.
2026-01-20 01:33:38
285
Blaze :
I have MCAS and take Zepbound, it regulates my MCAS more than anything else.
2026-03-14 17:05:24
6
Sarah 💛 ساره, MD MPH :
Nope. I’ve been on one for 2 years and my postnasal drip and allergies are still just as bad. Still take 80mg of famotidine and 20 mg cetirizine a day.
2026-01-20 15:17:54
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ཐི^. ̞.^ཋྀEvieཐི^. ̞.^ཋྀ :
its done amazing things for my autoimmune disorders!
2026-01-20 02:00:46
182
Christi Miller Craig :
I cant speak abt mcas but the thing I miss most abt taking a GLP1 (aside from the weight loss) is the way it seemed to relieve all the inflammation. Im always saying that nobody talks abt that enough & just figured that maybe I was the only person who felt like it really alleviated the inflammation in my body.
2026-01-20 20:45:09
9
LK Squared :
I’ve struggled with long COVID for years. Immediate and significant difference since starting a GLP-1. I’ve been on it for about a year, and it gave me my life back.
2026-01-20 13:16:52
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MamaInterrupted :
Yes it can. I have MCAS it has greatly helped
2026-01-20 02:25:41
77
Courtney :
Quite a few people in MCAS groups with anecdotal evidence so we’ll see what future studies show! I feel like we need more info on testing for MCAS first since current tests are somewhat inconclusive.
2026-01-20 01:22:35
71
amourvive89 :
I just recently got diagnosed with SMA syndrome and i have MCAS also. I have noticed that when I’m off my GLP1 that both of those things get significantly worse could there be a correlation between the GLP1 and that?
2026-09-09 02:37:11
0
cmnatz :
I was hoping to get on one to help with weight loss and also inflammation due to ulcerative colitis - but my insurance doesn’t cover it for me because I don’t have diabetes 🤷🏻♀️
2026-01-20 15:18:30
1
yorkiemum22 :
My inflammation has improved greatly
2026-01-20 06:52:01
50
HighTideHomestead :
Anecdotal, but I haven't had any issues with my MCAS since starting my MS disease modifying therapy!
2026-01-20 03:39:57
97
Jenn 🇨🇦🇺🇸 :
also...
2026-01-20 01:19:17
46
Gloria Rey💜 ⁷ :
I can’t take any GLP-1s😭
2026-01-20 03:54:54
5
𝚜𝚊𝚖𝚖𝚒 :
but what if we have gastroparesis? or overall limited motility? 😅
2026-01-22 20:50:06
5
Lady Meow :
mcas pots + glp1= I can live again. my variety of food went from like 20 things to everything 😂 crazy!
2026-01-20 12:42:08
17
neurocomplex_thots :
How do you get taken seriously by an allergist for MCAS? My experience is they don’t believe in it until MCAS crisis and the system collapses.
2026-01-20 14:44:23
8
katehughes8693 :
I have MCAS, POTS and hEDS and noticed a huge improvement in all my w
2026-02-09 04:02:32
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