@bseizurefree: #onthisday B’s VNS is something I wish we did much earlier for him for I feel it would have given him better seizure control. His seizures when he were younger always were so long in duration. Once the VNS was placed, it cut down the duration significantly. #seizure #fyp #VNS #dravetsyndrome

bseizurefree
bseizurefree
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Region: US
Wednesday 21 January 2026 22:23:31 GMT
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pondroomies
Pond Roomies 🤠 :
Simulator? What is it simulating?
2026-01-23 08:48:25
3
genxfindinghealth
GenX_ChronicallyillJourney :
Thank you for sharing B with us. He did so well at his appointment. Does he feel anything physically when you can the VND or when it’s connected to get data? Was he uncomfortable at the end or just over the appointment? Thanks 😊
2026-03-08 03:57:17
4
dollarstoremothman
Luke :
One of my little brothers has his first battery replacement coming up soon. I’m so grateful for his VNS. It’s given him a better quality of life
2026-01-22 00:48:17
16
bri.baby98
Bri :
What are the rubber things called? The things he has in his mouth. What are those called and where do you buy them?
2026-01-22 01:54:03
5
amiriahmia
Mi’amor❤️ :
I’ve been watching all your videos recently and he’s such a sweet kid and I love his smile! I’m sorry he has to go through this it breaks my heart. He makes me laugh when he does his little dance on his mater truck. You guys are strong that’s for sure!
2026-02-26 00:50:04
0
deanakillingbeck
deanakillingbeck :
So handsome 🙏🙏❤❤
2026-01-22 01:43:24
1
ambubaggins1
DystRTR :
What a brave kid!
2026-01-22 20:02:46
2
jolynn.29
Jolynn.29 :
He is so brave!!
2026-01-22 01:47:13
2
grandmacathy19
grandmacathy19 :
Does he have a saliva increase with the VNS
2026-01-21 23:22:12
2
bee1ofakind
Mama Bee :
The VNS is such an amazing tool. I’m so thankful for it every day.
2026-01-21 23:25:38
2
wheezer15
JL :
This all sounds like good news, sending love and blessings to the B-Team!
2026-01-22 02:01:57
1
jennabristow
JennaBean🤠 :
I’m fascinated by this and so glad it has cut seizure time down!
2026-01-22 04:14:51
1
lisamlev
Lisa L :
Agreed! VNS has been life changing 💜❤
2026-01-22 10:54:12
1
campbadger2012
Janet❌ :
So happy VNS is working for B…. 💜💜💜
2026-01-21 23:58:58
1
d0r0thyzb0rnak_
Dorothy Zbornak Reincarnated :
I’m glad it helped him! My husband opted for a NeuroPace and it has helped too. No more tonic clonics! He still gets focal but those are much easier to manage.
2026-01-23 07:25:43
1
weirdnancy63
fancy nancy 63 :
It takes alot to do what you do let alone share. I mean every mother does alot but many have special extra duties. He's getting quite handsome. Thank you for sharing your family! 🥰🥰🥰
2026-01-21 23:23:20
1
jenneferavery
Jennefer Avery :
He’s so brave ❤
2026-01-23 03:23:30
1
stephenjameslyons
Sly one :
You got this B from London Ontario Canada:)
2026-01-22 00:44:07
1
victoriadrake563
victoriadrake563 :
That beautiful look that he gives at the very end of this video his eyes tell more about him than anything at that moment. Handsome young man.
2026-03-08 01:41:51
0
pop_pop542
pop_pop542 :
Your young man is pops hero. I work w Special needs He’s been through so much. You and your family are amazing ❤❤❤❤❤
2026-01-24 04:23:48
0
realrcf
Aaron Thomas :
Such a cool kid. I'm constantly in awe of how your family makes life as normal for B as you can. ❤️
2026-03-02 04:45:46
0
kimbokimmyc
Kimberly :
What a beautiful boy with the most pretty eyes ❤️❤️❤️
2026-02-21 02:39:35
0
wendistetina
1GirlandaGlizzy :
He did great!!! He is such a handsome young man!!!
2026-02-13 21:52:08
0
theherbwitch
theherbwitch :
This is amazing.
2026-01-24 13:37:35
0
jacquieseivers57
Jacquie Seivers :
he has such beautiful eyes! these devices are amazing!
2026-01-24 00:57:50
0
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