Gluten Hates My Guts
Region: GB
Thursday 22 January 2026 21:10:01 GMT
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I'm just bored :
I went in when I was twelve with really bad stomach aches never knew what they were and got told I was lactose intolerant now im 16 and diagnosed with celiac a month ago
2026-01-22 21:18:53
6
aniTørr :
Low iron for several months.
2026-01-22 21:32:20
5
Stevevls :
i found it from skin disease.
2026-02-07 11:40:26
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mogs ♾️🌈 :
did you get a blood test. i have/ have had all of these symptoms but my bloods came back normal.
2026-03-23 15:54:20
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zara 💜 :
I'm currently waiting for a consultation with gastro. I've got loads of GI symptoms for years, and I was tested 8 years ago as my dad was diagnosed as I was having symptoms, then tested again a year ago when I ended up getting diagnosed with HSD. both coeliac tests were negative. turns out I've been IGA deficient for EIGHT YEARS and it was filed wrong 😭, they now think it's either coeliac or possibly very early/mild Crohns, but leaning more towards coeliac
2026-04-09 10:24:32
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Jane :
I don’t understand, to begin with isn’t it just a blood test? My 10yo has been having stomach issues for about a year and the GP sent her straight for a blood test to test for celiac. Am I mistaken that they’ve tested her or are drs refusing to do a simple blood test on people?
2026-01-27 14:33:06
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DCF :
I was told I had extreme levels off stress. YES STRESS THAT WAS CAUSED BY THE SYMTHOMBS!!!
2026-03-26 09:55:51
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Michele.j.d :
I was told by so many GIs that I had IBS and to eat more fiber. I would eat so much fiber and spend most of my day in the bathroom and the. I would undo my pants at work and hide my bloated belly under my desk. I guess because I was overweight, they never considered celiac disease.🫠
2026-01-26 00:30:59
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Joyce E :
😳😳😳
2026-02-05 03:42:23
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mal :
my new roommate has celiacs and I wanna thank u for your page bc it’s helping me learn a lot about it!
2026-01-23 04:32:39
2
Paige Courtney Elean :
when I was diagnosed my brother was already diagnosed and they said at the time 16 years ago that it was rare for siblings to have it. oh how time and knowledge changes
2026-01-23 15:44:45
2
Natalie Rautenbac545 :
my husband developed celiacs and another auto immune disease of the akin on his skulp. but have you ever heard of someone with celiacs developing lactose intolerance
2026-01-22 21:22:23
1
𝑙𝑖𝑙𝑦🍂 :
i got diagnosed in march last year is heart burn common with celiac disease?
2026-01-23 19:45:53
1
:
I’ve been going to doctors for years now and they’ve always thought I had celiac and I recently got diagnosed with chronic gerd and I’ve always had lactose intolerant and did you have gerd at all or intolerance to dairy??
2026-02-02 17:01:22
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Corinthia :
My husband and I had issues throughout our life and had issues gaining and keeping weight. I had anemia and multiple bowel issues but doctor's never took me seriously and claimed I was a closet anorexic and had it marked in my chart without my knowledge. My husband was diagnosed with IBS and severe heart burn. We were officially and correctly diagnosed when our daughter was diagnosed at the age of 2 because our pediatrician took our concerns seriously. Getting ourselves diagnosed was still an uphill battle because no one wanted to take us seriously when we demanded to be blood tested. If our daughter hadn't been diagnosed first and we didn't have the backup that celiac was genetic I truly believe we wouldn't have been able to get those tests done. Doctors really pushed against us especially because we were getting tested in our late 20s. they just didn't believe we would undiagnosed for so long. I truly hold a lot of anger towards the doctors we ran into, the ones we fought against, the ones that didn't believe us when we said something was wrong. I also hold a deep gratitude towards my daughters pediatrician for deciding to look deeper. fight for yourself, you know your body and no one else is going to fight for you.
2026-01-27 18:51:31
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༺𝔍𝔞𝔪𝔦𝔢༻ :
I've had symptoms for a year, my blood test came back negative for celiac and my dr kept saying thats enough to rule it out even though celiac uk and nice and nhs all say it isn't enough. its only because i've been pushing i now have an endoscopy appointment to fully see whats going on.
2026-01-27 14:56:40
1
paulino1980 :
mine was linked to a thyroid issue, from greys auto immune
2026-01-25 19:31:06
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HYUNJIN :
❤
2026-01-25 19:07:28
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✨🌜⭐️🌛✨ :
I had low iron, calcium and vitamin d for a long time but I still had to argue with GPs for years before they’d do a broad blood test to find out why. I didn’t have any classic signs of CD but I knew something wasn’t right and I was at work but managed to get a tel appt with a locum and I unleashed, I told him I felt like I was going to 💀 at work, this isn’t right and no one cares, he eventually gave in and a few weeks later.. coeliac disease!
2026-01-25 11:02:55
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Kiki :
I passed out at one job, spent a week in hospital thinking it was relating to my pre-existings and then the follow up with the ‘GP’ few weeks (bless her I think she was covering) she said ‘oh you’ve got coeliac don’t you?’… the only thing I could say was ‘DO I?! What’s that?’ you tell someone they have a disease and things spiral there for a mo. Then those blasted nutritionist meetings, trying to push Coeliac UK subscription on me and the same conversation every time. I’ll never forget when she had a trainee with her and the trainee said to help my levels I should have MALT drinks… I CACKLED
2026-01-24 20:27:44
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Annie :
Yeah I had all them symptoms. I was told over and over it was depression and ibs. It was only for a fortune teller that told me to get tested for celiac. Imagine 😭 didn't know anything about it. Had the camera and also had stomach, pancreas and bowel infections. I felt like death. 12 years later I'm good. Just fatigue all the time but I'll take that any day
2026-01-23 19:37:52
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𝑆𝑎𝑏𝑟𝑒𝑒𝑛 🎀 :
I have celiacs and my weight doesn’t change 😭😭😞
2026-01-22 22:57:22
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