Miranda | medical mama life
Region: US
Friday 23 January 2026 23:14:49 GMT
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JessicaUpton :
Did you do genetic testing, this is my son to a t. Cystic fibrosis test, aspirating while
2026-01-26 22:33:38
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gwendolynvg11 :
Please look into Primary Ciliary Dyskinesia! I was diagnosed at 13 but was constantly sick with pneumonia. Wishing u all the best ❤️
2026-01-25 05:20:17
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Highland Em🌹 :
this was my son and he ended up diagnosed with CF with a common gene and a very rare gene. only found after a full gf genetic screening x
2026-03-02 11:48:39
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lee8440 :
Has anything been found to be wrong with her? My daughter has similar symptoms
2026-03-15 02:56:54
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hellatx :
Oh mama! I’m so sorry I hope yall find exactly what she needs to be better 💕
2026-02-18 19:23:39
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Hallie | Student Therapist :
Just wanna say found your TikTok from just searching and you might be the answer to my son’s problems. Not sure but your daughter sounds a lot like my son who’s 7 months old and all we know is he’s likely aspirating per feeding therapist and he has a dairy allergy that’s been resolved.
2026-01-30 23:05:12
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𝓵𝓲𝓿 🍒🐆🎱 :
Have you guys looked into mayo clinic?
2026-01-30 15:14:59
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Tessa Cool :
Get genetic testing done!!! My daughter also is pneumonia prone and she has a duplication! Which has helped with all of her other care!
2026-01-30 14:02:28
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Jasey Wilson :
If she’s aspirating .. why would they not give her an NG or G tube? My son’s symptoms to a T were the same as what you’re describing. They sent him home with a feeding tube & it was a night & day difference!
2026-01-26 23:20:56
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Kimberly Gould Crawl :
We have travelled to that amazing hospital for my son for 10 years from VA. The very best team.
2026-01-25 17:36:30
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courtlynch :
I went through something similar, it was tracheamalacia, GERD, and asthma
2026-01-25 02:53:20
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LG :
TAKE THE TRIP AND TAKE HER TO NYU IN NYC!!!!! I PROMISE YOUR LITTLE GIRL WILL BE TAKEN CARE OF BY THE BEST OUT THERE!!! Wishing you the best of luck
2026-01-25 16:50:17
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Samantha Kannmacher :
My son has had the exact same issues! Like the same exact situation happened to us. He is about to go through his second round of surgery here soon too. Best wishes for you!
2026-01-24 00:06:12
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Soph :
look into Eosinophilic esophagitis
2026-03-18 21:19:41
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Jasmin | Mom & Wife 🩷💙 :
I had chronic pneumonia as a infant/ toddler. I’m so sorry you’re dealing with this 💙
2026-01-24 00:47:32
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Wife&mama2019 :
Sending continued prayers for baby girl!
2026-01-23 23:58:33
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simply_divine_art_by_sb :
Feels like my journey. Took me years to get all my diagnoses. Loads of doctors that would actually take me seriously. My mom finally telling me stuff they found when I was a toddler and hereditary things she had that would’ve helped me in the beginning. Now, I’m just fighting the pharmacy to keep my prescription in stock. 3 times since October they haven’t had it in stock or the full amount in stock.
2026-01-24 20:34:12
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Jax&Dallas :
Does she have Laryngomalacia? My guy has that, had a laryngeal cleft and has Tracheomalacia. He has surgery but still aspirates, I’m honestly surprised he hasn’t had pneumonia, just has some irritation/ inflammation in his lungs.
2026-01-24 00:36:28
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Chronically Ria :
My son didn't have the obvious signs of laryngomalacia but was aspirating severely. He ended up with a feeding tube because of the aspirating and pneumonia. ENT kept telling us it wasn't an airway issue but ENT number 3 did an exploratory scope under anesthesia and discovered that he had both laryngomalacia and a laryngeal cleft! Once both were surgically repaired he stopped aspirating! He also has asthma and the inhalers did help too. He had the sweat tests for cystic fibrosis which were inconclusive so we did genetic testing and hmfound out he has Sotos Syndrome, Alpha1 Antitrypsin Deficiency, and FLG related asthma. Don't stop fighting for answers!
2026-01-26 21:33:25
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TTshop Troll :
if she's silently aspirating that will cause the phenumonia (been thru it with my daughter)
2026-01-26 20:45:27
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ThatGirlJackie :
my son was exactly like this. even had a life or death situation with aspiration pneumonia that caused septic shock. he git diagnosed at 9 months a severe asthmatic. he’s 8 now & has pretty much grown out of it i guess. those first 3 years he was at doctor darn near every other week. he had the same surgery as well. basically, spring/summer i have to keep an eye on him & keep an inhaler & neb treatments on hand.
2026-01-27 03:14:41
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Alexandra Huddleston :
We did this. After years they determined she has NK Defect. She doesn’t have the ability to fight off viruses at all. Shes 7.
2026-01-26 18:15:48
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GigiTastic | DS Mom 💙💛 :
Cystic fibrosis?
2026-01-26 17:13:28
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Sbadveturesmt🏔️🚣 :
My daughter had the same issues. She had chronic pneumonia and ear infection infections. She had pediatric sick sickness asthma, and a milk protein allergy that they said she would outgrow by the age of 5-7 years old which at 7 she did outgrow it and is moving helped too
2026-01-26 21:14:00
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Kendra Bliss-Cundiff :
My daughter had similar symptoms. She was not getting pneumonia but was having low oxygen with every viral illness. Was in the hospital 3x before she was 18mo. She always sounded “gurgely”. At 21 month we started an inhaled steroid and it has been life changing. I hope you find all the answers for your sweet girl!
2026-01-26 15:18:35
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