@shaylatalei: Replying to @xnxjx_ My stomach is paralyzed, which means I don't eat or drink like most people do. I get a large portion of my hydration through my TPN, but my body still needs more support - especially because I also have POTS. That's where IV saline comes in. These extra fluids help keep my blood volume up, which can reduce dizziness, fainting, and that awful "about to pass out" feeling when I stand. It makes a huge difference in how my body functions day to day. This is just one of those behind-the-scenes things people don't always realize when they see someone living with chronic illness. * Not medical advice - just sharing what works for me under my care team’s guidance 🤍 #chronicillness #hydration #viral? #fypツ #dayinmylife
the fact that you can perform the steps whilst talking into the camera is an amazing feat. and its a medical thing so its not like you can do takes
2026-01-29 19:44:37
309
queenbrowngirl40 :
can u still brush ur teeth and do u have any oral hygiene problem
2026-02-01 02:57:41
25
Ryan Fleenor :
If you wanted to work out/build some muscle, can you customize your liquid nutrient bag to, say, up your protein?
2026-03-08 15:50:50
0
njord's realm :
Will your condition get worse or can you live with this to you get "old"?
2026-03-04 00:12:32
3
hopegonzaless :
there's so many cute little valentines day decorations at the dollar tree rn!! would be super cute if you're into that for your iv pole 🩷🩷🩷
2026-01-29 20:16:01
56
CrisRibordy :
The light blue looks amazing on you ❤
2026-01-29 22:23:39
18
Ava :
How do you get a home health nurse?
2026-04-15 00:16:49
0
Ntaylor :
Can I asked what caused this? I have 6 autoimmune diseases and gastroparesis is one of them. I can’t keep healthy weight on.
2026-01-31 02:40:43
3
Jade 🌼 :
Howcome you don’t use sterile gloves when accessing your line? I feel like everyone in the UK uses them and nobody in the US seems to!
2026-01-29 23:33:36
2
nopenope :
your hair is really pretty!
2026-01-29 19:25:43
7
Chicayna McNay :
How did you find out your stomach was paralysed?
2026-02-22 13:56:28
0
MaidMarion :
You said you get weekly bloodwork to know how to set up for the following week. What if it changes?
2026-01-30 04:56:51
3
secretsophie :
do you still use your gj tube at all? my j feeds are currently failing me and i’m also relying on tpn alone with how bad feeds are.
2026-01-29 19:36:48
15
angie :
Would doctors ever try to get you back on G TUbe feeding!?
2026-02-01 04:02:58
1
MissFumiko :
I know it’s probably a lot but decorating for each holiday for your IV stand? My mom has a Christmas tree that she keeps up and decorates for valentines, Easter, etc. it’s cute!
2026-01-29 19:54:11
33
Ines :
Im sorry if you answered this before, but can you exercise ? I mean going to the gym, long walks, running, cardio etc….
2026-01-29 21:29:59
1
Lakayla 🫶🏾 :
such a beauty
2026-01-29 19:36:48
3
Kenna ✌️ :
Silk flowers for spring would be cute!
2026-01-29 20:48:08
1
xuanshao422 :
Do you still feel hungry?
2026-01-30 03:13:04
3
olivia.snyder20 :
I love the fact that you are so open and sharing these things for awareness! You are truly a great advocate🩷
2026-01-29 20:07:52
2
Nicole :
Does your health insurance cover your TPN?
2026-02-08 01:34:17
1
Luiz :
First
2026-01-29 19:15:46
1
Brass Leopard Vintage :
Maybe some fake flowers and vines for spring? 🩷 I love your videos. And I loveeee your hair
2026-01-30 01:17:43
1
Thelastbraincell :
Hello! Please may I ask - do you still feel hunger or thirst? Do you still go to the loo for number 2?
2026-03-13 00:59:25
0
emma.strickk :
I think a Valentine’s Day theme for the iv pole would be super cute 🥰
2026-01-30 04:11:10
0
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