Was her HLHS picked up in ultrasounds? I’m just wondering how you got diagnosed, was it via an ultrasound or was she born with difficulties and they went from there
2026-01-31 00:44:20
30
_.licia._ :
you guys are twins omigoshh
2026-10-24 07:30:00
18
Cat Jay :
Is she able to apply for something like a MAW? I had one and it was wonderful 💜
2026-10-05 19:53:39
38
Vale :
Shes literally your twin
2026-01-31 08:36:44
513
🪩🩰olive🐞🌞 :
Does Dawn-Louise feel scared about what her future may hold? I can’t image what it’s like for her and both you and your partner. I love how she takes life for its beauty and tries so hard to create such beautiful memories and do things she loves. She’s truly resilient through something that must be so scary xx
2026-01-31 07:05:07
48
ewuradjoa_becky :
what's HLHS
2026-10-09 13:32:36
3
Christi | CHD Mama 💙 :
hlhsers do not have a very low life expectancy anymore, mama. (mama to an hlhser born in 2012)
2026-09-04 22:12:01
3
Abs :
since her body is adapted for 85% oxygen, if she got a transplant wouldn't the higher O2 be harmful
2026-02-02 00:14:58
22
nia ❀ :
She’s so strong she can really be proud of herself 💓
2026-01-31 16:51:56
6
Liam Pearce :
Amazingly said 👏👏
2026-01-31 18:46:19
3
sez :
Your both gorgeous ❤
2026-02-07 20:03:19
2
jt :
I understand that you don’t sugar coat this diagnosis, but it’s a shame you don’t seem to have any optimism when speaking on her life expectancy. I know every HLHS case is different with different abnormalities and your daughter has a severe case, but people with single ventricle physiology are expected to live well into their 40s, 50s and beyond. I hope you don’t instil this fear into her, especially with technology advancing as quickly as it does. My son had his Glenn last year and is doing great. I expect him to out live his father and I.
2026-10-18 17:48:00
2
Àl̾éx✝️ :
🙏
2026-02-01 23:21:24
1
lacy@pokemon🍄 :
my brother has chs
2026-01-31 08:13:41
3
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