@raising.remi.on.o2: She looked fine on the outside… then we saw the numbers: 79% oxygen at night. Feeding was still a battle. Her breathing didn’t look right. So we pushed for a CT scan. That’s when they finally listened. If you’ve ever been told “everything looks normal” while your gut said otherwise… you’re not alone 🤍 Follow Remi’s Journey 🌈 #medicallycomplex #oxygenbaby #feedingaversion #raredisease #parentintuition