wheredidbecsgo
Region: CA
Tuesday 03 February 2026 20:59:43 GMT
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Jana & The Mothercluckers :
I don’t have the shaky voice but I am very halted which I’ve never had bfr
2026-02-03 21:49:14
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rose_nielsen1 :
I have fibromyalgia & arthritis and my doctor still has a hard time believing how much pain I have.
2026-02-04 04:14:55
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Nome 🇬🇧 :
absolutely! I'm 34 with mild Elhers-Danlos and moderate osteoarthritis in my knee. It took me so long to get help and every Dr that sees my scans ALWAYS say "you're too young" yeah thanks I wish that was the case! I have learnt to be more understanding. followed you for a while and have massive admiration for you and your amazing spirit.
2026-02-03 21:45:58
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cornflakes1$ :
I was left with pain after sit. Don’t care what anyone thinks. It’s my body.🤷♀️
2026-02-05 01:36:47
1
Love_LGA 🇨🇦 :
I worked in dementia care for 9 years before developing ME/CFS. The neuro inflammation I experience is similar to the cognitive struggles experienced in dementia and Alzheimer disease. It’s so frustrating and incredibly hard to get any kind of help or support. A lot of what you have described I am experiencing. 💔Thank you for advocating ❤️
2026-02-04 16:26:05
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Tracey Amos :
So very true!!! Invisible but happening in real time. Symptoms are what someone tells you not just what presents visually…thank you for your phenomenal determination in getting this out in the open and normalizing discussion & support!!! You are magnificent!!! 😁💪❤️✌️🙏
2026-02-03 21:54:26
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Lily Ofthevalley957 :
Your bangs are cool today ❤️
2026-02-04 05:53:21
1
shellsart🤍✨️ :
Apathy is literally the worst 😕 I hate those moments in my life when I go through seasons of Apathy because I'm a big feeler also . So I can imagine how awful that amongst all your other symptoms would be 🥺🤍
2026-02-05 13:16:17
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user4322395942982 :
Exactly I have had chronic migraines since I was a child and never was heard or listened to!!! Just in the last 5 years I’ve finally been to see a neurologist about them who let me unload 55 years of frustration!! And has been trying to help me but still haven’t been able to get them under control!!! So very frustrating to say the least!
2026-02-04 20:39:44
3
KImberly Urysz-Valade :
and the doctors saying "its your anxiety"...which is so lame and a cop out i think
2026-02-04 02:57:54
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🇨🇦~ Ann~ 🇨🇦 :
sitting here in tears watching this , Cause I've experienced alot that your mentioning . its scary and bery lonely as i no longer even go out , easier to just stay home 😢
2026-02-05 22:02:34
2
Erin Gill :
Thank you for sharing. All of these symptoms are small issues individually, but you put them all together and it's a nightmare. No wonder you're so exhausted.
2026-02-07 23:09:40
1
Joceline Muise-Comeau :
So very true. 🩷 I have MS and people don’t understand.
2026-02-04 15:31:19
1
Catzyme🇳🇿🐶🐈 :
Preach
2026-04-03 03:12:33
1
Kimmie :
my husband's voice got shaky and yes he was easily off of balance
2026-02-04 03:26:06
2
KImberly Urysz-Valade :
Hugs Rebecca 🫂
2026-02-04 03:05:52
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Jana & The Mothercluckers :
Thank you for sharing. I exp most of these too. I am posting a very similar message right now.
2026-02-03 21:47:21
3
Sara🖤 :
Reminds me of shopping online when sleeping. Instead of sleep walking or talking I sleep shop. The sh*t that’s come in the mail! Weird haha I now need to keep my phone in a different room
2026-02-04 18:35:16
1
Sherry P :
Yes you look at my sister w sjogrens and she looks normal but has severe flares or body aches so bad
2026-02-04 00:00:20
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Anita Bodde :
Amen to that. That makes you feel invisible 🫥
2026-02-04 02:29:21
2
BettyBoop78 :
The federal government discriminates too by denying the majority of DTBC applications made by people with non visible but disabling illnesses like rheumatoid, celiac, hashimoros, cfs, me, long covid etc - even with a family doctor advocating it seems like they have a very hard time believing
2026-02-12 03:51:28
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Eva Mac Innis775🇨🇦 :
So very true !
2026-02-04 11:57:53
1
Tara Powell840 :
These videos are going to reach so many people , I’m so glad u chose to post ur journey , thank you ❤️
2026-02-19 04:49:37
0
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