tananeedshelp
Region: US
Tuesday 17 February 2026 23:45:54 GMT
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thegracesummers :
Nailed it once again. I have no idea what my body will be capable of or when but I’ve just started to underestimate it in every situation.
2026-02-19 22:49:59
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afatsum :
I have fshd MD. Sometimes when going upstairs (my left leg is super weak) I’ll put my right leg up and in then in a hurry I’ll try to step up with my left leg due to muscle memory and it just doesn’t want to work. Feels like dead weight or it feels like it’s just turned off
2026-02-18 00:11:40
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heatherbourne13 :
Yes… so much this!!! I have muscular dystrophy type 2I, this is exactly how I feel 🥹❤️
2026-03-09 01:05:31
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Emmaa :
I literally understand this word for word
2026-02-18 03:59:25
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Tree-zee✨ :
The feeling of tightness in your knees is real that’s me with my thighs and feeling the tremor/shaking of the weakness coming in🫂💯 *sigh* it’s exhausting lowkey😅
2026-03-17 02:34:00
0
Mad :
Dude I have talked about this in therapy so many times!! It’s is such a weird form of body dysmorphia/brain body disconnect!!
2026-02-17 23:56:19
3
Jomana Zakaria :
you literally describe it so well! its sort of like a phantom limb, my body cant do things anymore but my brain still didnt catch up to the fact
2026-02-18 01:25:54
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Kai Code :
I understand this and the opposite, there are certain steps in my house I always think I can’t step and feel anxious but when I just do it I realize how easy that was, it’s the fear of not making it
2026-04-13 07:39:34
0
Reese :
I’ve never heard this put into words so well
2026-02-18 00:47:28
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Beth :
idky this reminded me of this but I finally started dreaming in my current physical state as opposed to dreaming like I'm still the "old Beth". The dreams in between getting to this point were intense to say the least. Did you know the more still you are while sleeping, the more you dream?🫠
2026-02-18 22:20:36
1
kier :
Yeppp. Like I’m so painfully hyperaware of the progressiveness but blissfully unaware all at once.
2026-02-18 01:27:41
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Shannon Greenway :
I feel this so much💗
2026-02-18 23:02:58
3
Things my Wheelchair Saw Today :
I wish I understood it when I was your age. Not to mention wish the doctors did. ❤️❤️
2026-02-19 05:57:47
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THA_dokktor👨🏿🔬 :
very well put. we wake up to new bodies everyday
2026-02-23 04:23:29
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stilljoyfull ChriStine 🇨🇦 :
Wild, I’ve never heard anyone describe my body before! I don’t think I’ve described it, this way either! On Point, Thank You so much 😊
2026-03-14 19:12:50
1
Ramona Helen Eltvik :
I feel you ❤️I feel much anxiety. And the tightness around my knees like they try to hold it all together. And the pain, yes 😔 Sometimes i actually forget I am disabled because I am in an hurry and after 10 seconds I have to turn around and grab my cane and be like “wow, I’m grateful for this moment bc I forgot I am disabled even if it is just for a short moment”.
2026-02-18 12:05:15
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