@mmadrigallsresearch: A lot of people with EDS notice nights are harder. That’s not random. Our nervous system shifts across the day like hormones change, inflammation rises, you’re horizontal, and you’re not moving as much. In hypermobile bodies, those normal changes can feel bigger. #ehlersdanlos #chronicillness #dysautonomia #connectivetissuedisorder #neuroscience

Living Signal Research
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Wednesday 18 February 2026 23:10:20 GMT
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justam888
🪬🌟Cocoa-Mo🌟🪬 :
It’s the opposite for me. But I’ve always struggled with a ‘normal’ circadian rhythm. I feel more alert & awake at night and am able to focus better too. During the day I struggle with extreme fatigue & brain fog. I read somewhere about the potential reason for some people having their circadian rhythm reversed and it had to do with early evolution & survival mechanisms. In order to survive human groups needed to have different sleep schedules so they could be protected during the night against predators or other threats, which makes total sense to me. Just like us ‘sensitive’ folk know when a storm is coming because our bodies react to pressure changes which is linked to the same idea of survival mechanisms during our early evolution.
2026-02-19 05:02:05
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mmadrigallsresearch
Living Signal Research :
Night just lowers the noise. When everything gets quieter, you feel more. What’s your experience?
2026-02-18 23:11:32
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jacobboogiebear
jacobboogiebear :
I actually have a lot less symptoms at night personally, the low amounts of light and sound around me lets me kinda just focus on myself more then handling the overwhelming stuff causing my HR to freak out
2026-02-19 04:09:29
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ferretsgalore9
FerretsEverywhere❌ :
Ugh my cortisol is sky high at night, and I am wired to the sky
2026-03-19 05:06:37
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lionsbumblebee87
🇨🇦 BAE 🌱🐚🍀 :
Pair this with Crohn’s disease and it’s doubly amplified, add in CVS too (cyclic vomiting syndrome) and it’s over exaggerated to a max. When I wake up I run to the bathroom for years on end undiagnosed MCAS triggered my CVS to be far worse treatment of this has calmed my ability to have more strength mentally. But I also have cranial instability and sleeping “clamps” my vagus nerve and inflames my neck and shoulder/back pain too. Thankfully I fiballly got a referral to internal medicine to deal with my complex conditions. I also have moderate sleep apnea and night terrors so what is sleep?!
2026-03-01 13:47:51
0
morganquinn115
morganquinn115 :
What is ANS
2026-02-20 00:21:25
2
yasdnilyourmom
❌yasdniL❌🦓 :
Mornings are way more difficult for me!
2026-03-10 21:12:33
5
storm_maiden
Storm_Maiden :
I am over tired to bed by 9
2026-04-03 13:22:45
0
marijumamma
mari :
so, I'm hearing that my eds is the reason I cannot relax at night & my entire body feels like it's on fire & crawling & I get those awful body jerks.
2026-02-19 17:19:31
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nicolechuba
Nicole | EDS Unfiltered :
Just starting to learn about the effects of cortisol on my hypermobile body. Very interesting
2026-03-13 09:32:10
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dreamless.dreams
dreamless.dreams :
I always wondered why nights were so painful. when my friend talk about waking up and not wanting to bed out of bed, im like I couldn't think of any worse as the minute im aweak i want to move my body to ease the pain on my lips shoulder andvwast area
2026-03-02 04:40:55
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rara27271
user2048662919768 :
But why morning though
2026-02-20 05:09:26
1
jessicahale33
Jessica Hale :
How do I get tested for this?
2026-03-01 00:48:40
0
drashleycooper
Dr. Ashley Cooper :
Why can heart rate and heat intolerance be worse during sleep though? So curious
2026-02-28 02:05:53
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valdezmama22
valdezmama22🇲🇽🇨🇦🇺🇦🍉 :
Makes so much sense 😭😭😭
2026-02-19 01:57:12
3
amy3990
Amy :
I wonder if this is why I'm very nauseous at night!
2026-02-19 02:24:39
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kateod312
Learning life :
Thank you for explaining this. I’m forwarding to family & friends when they ask why I’m worse at night.
2026-02-19 01:41:08
1
efaulkner99
Eleanor_99 :
I'm hypermobilen in most my joints but not been diagnosed with EDS, are there many similarities??
2026-03-07 12:40:28
0
guest_mom
guestmom :
Can this cause night sweats because my doctors can't figure out what's causing mine and it's been driving me crazy the last two years, among allllll the other symptoms and episodes my body has been through 😩
2026-02-19 17:09:49
0
misss_queeenb
👑Amy🐝 :
I’m opposite especially in the winter
2026-04-19 17:25:16
0
michello_kitty
Noisey Lil Bird :
I have elevated cortisol and Norepinephrine
2026-02-19 08:21:57
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silvergirl777
NancyAnn :
It feels like torture, especially when more than 1-2 nights in a row. I've described the feeling as having had a shot of tranquilizer in 1 arm and a shot of adrenaline in the other-- leaves you feeling like you HAVE to move but so unstable & weak you just can't (at least not safely). It's just miserable.
2026-03-22 15:14:35
0
m.m.bish
m.m.bish :
My pain starts getting worse around 3pm and is high for the rest of the evening
2026-02-20 14:15:54
2
angelacorleywillis
angelacorleywillis :
My circadian rhythm is all screwed up. I've switched day and night. I typically feel a different type of pain upon getting up, as opposed to going to bed. I wouldn't say it's more or less at night just different.
2026-02-19 02:01:03
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