I was told fruit tingles and coke my first one. I'm about to do #7 and never had symptoms after other then sleeping the first 24 hours.
2026-03-27 21:53:06
9
QueenBreeza :
After I had my iron infusion the nurse handed me a can of coke. Thought she was trolling me haha. But never had any fatigue.
2026-03-23 12:03:08
7
E. :
This happened to me. Ended up in hospital for 9days as I almost died from it..
2026-02-25 07:21:40
58
🥀𝑀𝑖𝑖𝑖𝑧𝑧𝑧𝑦𝑦𝑦𝐵🥀 :
I have a infusion on Thursday, I'm thinking of cancelling it now! 😭
2026-03-02 21:59:41
16
Jae👑 :
Hypophosphatemia is very dangerous because it is mediated by FGF23 and the renal wasting of phosphate can last from weeks to months, that is thy checking VitaminD levels and Phosphate levels prior to an infusion are important. It has a higher incident rate with Ferinject and Injectafer (Ferric Carboxymaltose) iron formularies. Rather use Monofer for an infusion as it has a lower incident rate. In medical terminology always ask your Dr for Monoferric and not Ferric Carboxymaltose. Please also ensure Vit b12 levels are above optimal as Vit D, B12 and Iron deficiencies usually go together.
2026-02-26 07:28:31
40
🩷 Kaylee | T1D 🎀 :
what if you can’t have coke? 😭
2026-03-16 12:58:55
3
Alicia (uh leash uh) :
It was awful. Never will have infusion again.
2026-03-02 06:16:36
3
Jessieee :
I had it and it nearly killed me, I ended up with low phosphate for months, such a scary thing
2026-02-26 12:29:34
27
thedaydreamillustrator :
I got this on day 5 after ferrinject. It’s most likely you’ll get it after that one. I took effervescent phosphate tablets for 2 weeks.
2026-04-21 06:23:20
4
Sunflower84 :
okay serious question for those who've had iron infusions - I go for my first treatment on 3/16, I have to get them once a month and each one will be 4-hours long. I need all the advice and info please... what to do before, things to avoid, things to ask the nurse at the visit before they hook me up, etc - TIA 🩵
2026-03-05 21:16:47
4
whitedressmess :
I was so scared to have this condition after Injectafer. I did a check two weeks after my second dose and my phosphate fell from 2.7 before the infusions to 1.7. I never had symptoms. I was making sure to eat enough phosphate in my diet in that time.
2026-04-16 00:45:38
3
Maria & her books 📚✨🌟🧿 :
Glad you are feeling better. I am on day 2 and a half after infusion and I am still unwell. I am trying the coke thing, plus Panadol and nurofen for joint pain and anti nausea medication hopefully I will be ok tomorrow to go to work. I hope you recover well 🤗
2026-03-12 04:16:38
1
Elise :
I think this is why my joints are killing me
2026-03-07 01:53:13
5
Jackie Batten :
I seem to need an infusion around every 12 months ans I have had low phosphates the last two times. Not fun. The last one I have to have 3x supplements to bring it back up. Just had an infusion yesterday. Nervous for the wait till the blood test next week.
2026-03-20 10:42:38
1
rystalis :
I just had an infusion like 2 weeks ago. I just been craving coke so bad that I drank 3 can in a 24 hr period I put it down to being sick with RSV at the moment. I wonder if it’s got something to do with having that iron infusion. Also this is my 3rd iron infusion in a year.
2026-03-30 00:12:38
1
JV :
I dint understand why this viral information the doctors dint tell us ?
2026-03-21 19:22:42
7
Kel :
Two infusions and my phosphate is 0.54… felt worse after the infusion
2026-05-24 10:49:55
1
Georgina Kerr :
For the future you can ask for a half dose of iron. I have a bad reaction the first time on a full dose. I’ve just had a second one with a half dose with minimal effects
2026-02-25 15:00:42
9
:
Wait you struggle to get blood tests? I don’t think that’s normal my doctor has never said no
2026-03-04 06:12:25
6
Hannah :
What meds do u have to take before? And what makes ur phosphate go up?
2026-02-26 03:16:54
0
shann 🩷 :
I had one last November I was prescribed ferinject 1000mg I did not get one single symptom!! Felt great! Hope this helps 🩷🩷
2026-04-02 04:45:45
2
Juliem04 :
I’ve had a few iron infusions and no side effects whatsoever
2026-04-11 21:29:07
0
Kellie Possingham :
I was so sick after mine
2026-03-26 20:51:11
0
مياو :
hypo-phosphatemia not hyper-phosphatemia
2026-05-14 08:18:31
0
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