@ameliasnewnormal: Replying to @Ema these are the other symptoms I had which made go to to a neurologist and ultimately led me to getting tested for multiple sclerosis. #chronicillnessawareness #multiplesclerosis #autoimmune
Ive recently suffered an episode where my vision went blurry and hasn’t seemed to go fully normal. Had an eye test and all okay after that Ive got more floaters . When I wake in a morning I get pins and needles and a dead arm . I also have episodes where my balance goes . Went to the gp who did a few nerve tests and said he was concerned about my balance and issues so sent me for an mri. This has come back clear would an mri always pick ms up?
2026-03-03 22:08:15
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crazycharlie007 :
Have an mri private. That’s wat I done my gp wudnt listen to me. My mums got ms so I’ve grown up with it. I knew I had it when I dropped a glass. 4 years of going to my gp. When I was working I’d b walking to work and people wud say u been drinking. I cudnt walk in a straight line. Started infusion and everything stopped I was going down hill so fast. But after that infusion. I just hate the boredom of not working. I was a plumber
2026-03-03 09:05:17
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Naz Yousaf :
how are you finding the journey to your diagnosis? im 44 also and have had symptoms going on for nearly 20 years! I've lost my vision in my left eye multiple time, blurry vision everything yousaid plus more but have always been dismissed. I have an mri on the 12th and neuro appt on the 19th. finally they are listening after giving a 2 page list of symptoms!
2026-03-03 08:55:00
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PrettyGreatMachine :
L'Hermittes sign (the vibration you mention when nodding your head down) was my first ever symptom of MS, kind of felt like someone was twanging a guitar string down my back (it then spread down the backs of my thighs too!)
2026-03-03 14:12:35
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beche93 :
💯 would be properly exploring b12/pernicious anaemia. B12 blood serum testing is not enough. Many people diagnosed with ms when its really a true b12 deficiency.
2026-03-04 20:12:51
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Ema :
I also suffer and have been several times with pins and needles to hands and feet, brain fog and severe fatigue all of which is getting shrugged off because bloods are fine or they blame it on my thyroid
2026-03-03 10:43:56
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Bondie 20 :
What MRI was it , cervical spine ?
2026-03-03 13:10:54
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eltiktokkkk :
aaaaagh I have pins and needles/numbnrss in my hands, sometimes they are cold, mostly left hand though. my vision has been steadily getting worse and so I went to the opticians about two weeks ago 🫣
2026-03-05 01:07:08
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Starlite666 :
PVD. I had with floaters
2026-03-03 18:37:54
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Memely :
This sounds like my wife who has recently been diagnosed with MS after 2 years of tests on the nhs. Have you started any DMT’s yet? She’s been on occruvus with has kept her symptoms much more stable!
2026-03-03 11:56:15
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Vw :
B12 deficiency?
2026-03-03 16:54:58
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