@embracingecho: If you made it through the whole thing, you’re probably thinking the same thing as me. This couple deserves all of the love in the world. Losing someone to SUDEP is so confusing and devastating. If you could do me a quick favor and go sprinkle some light on @everyday_beautysalon page in support of them, that would be really cool. This was such a long convo that I might post a part 2. I really just want to share his story with the world because it’s really important to hear. Laying in their chair and getting my brows done while unraveling the depths of a condition I’ve struggled so much with, felt unexpectedly therapeutic. Epilepsy can feel so lonely and hearing that someone truly understands how it affects families, took that loneliness away. I hope to hear more of your stories like this — in your real daily lives, doing what you love. Also — MY BROWS look FANTASTIC. 🥹 #SUDEPAwareness #EpilepsyAwareness #EpilepsyCommunity #SuddenUnexpectedDeathInEpilepsy EpilepsyAdvocate ShareTheirStory LightForEpilepsy 💜
I couldn’t understand the last part. Did he say his dad died because of the seizures?
2026-03-05 13:57:48
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Lalo 🪼 :) :
Third
2026-03-05 05:03:01
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def_not k :
First
2026-03-04 18:42:01
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..em1lyy_ :
second
2026-03-04 19:20:45
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DisguyPv :
👍
2026-03-05 22:25:03
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bubblegumknuckles⁷ :
my sister & i realized just a couple months ago that our pain flares have been most likely focal seizures & absence. i think im having seizures in my sleep :( i dont have evidence of a tonic clonic yet. i only new i had one seizure as a baby, then we thought nothing. but i started getting sick with several things in 2017, looking back i think i may have had an absence seizure driving on my way to work in 2016? but only just realized that. i keep getting worse & i think im having focals every day. its scary bc my neurologist office wont message me back, im too fatigued & sick to even try to go in and advocate for myself. im so weak & tired. and my parents arent the type to take me to the hospital. my sister got a take home eeg a month ago but nothing showed. we have so many of the symptoms tho its all starting to make sense. but im too far gone sick to try with doctors we have like the worst state for medical care.
2026-03-05 05:22:49
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