thistrippyhippie • evie meg
Region: GB
Thursday 05 March 2026 19:42:19 GMT
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mamaastrawberry :
damn people might not want to see it, but I’m sure you don’t wanna feel it😭😭😭😭😭
2026-03-05 22:29:51
574
ashleysmith2452 :
I’m a nurse and so concerned how may medical professionals have never heard of dystonia, its not that rare. What you are doing is so important, something is lacking in education and/or training that this is so many peoples experience.
2026-03-07 04:54:31
27
monkeyhedder :
Yes, this is hard to see. Unfortunately if it wasn’t for vulnerable moments like this, we would know zero about this condition. You are a brave woman. Thank you.
2026-03-05 21:25:35
229
maisie :
omg i have fnd and am trying to get more tests done because of your story, while at the hospital a doctor asked me if I had heard of you, and said 'honestly evie meg introduced me to pandas/pans' i just wanted you to know your recognised in London too!!!
2026-03-06 20:10:40
28
🐮Charlize🐮 :
So proud of you Evie! Don’t listen to those haters, they don’t understand they can just swipe away! Keep sharing your journey it helps so many people and spreads awareness!!! Stay strong 🫶🏼🩷🫶🏼
2026-03-05 19:52:45
29
Maru Lein :
The ONLY reason my partner got diagnosed was because a medical student sat in on their appointment and remember it being mentioned in a very niche one time class!
2026-04-16 06:36:11
1
Danielle Shannon Mar :
2nd year OT student here and I have never heard of your condition. thankyou for sharing. im off to go down the rabbit hole and do some research
2026-03-06 00:56:07
31
Jodie Groves :
Not sure why but this made me tear up, as an Internet stranger im so proud of you for sharing the most vulnerable pieces of yourself to help other people and to educate ❤️
2026-03-06 03:51:46
5
Garfield :
Thank you for information and awareness!!
2026-04-06 22:43:36
1
Taboo🇵🇸🍉YourHypeGuy🇨🇦 :
As a Health Care Aide, you showed how to handle high stress situations, and how Patience and understanding is important. thank you.
2026-03-05 22:09:16
8
🌈💚𝕜ⅈ𝕥𝕥ꫀꫝ💖✨🐈⬛🌙 :
As difficult as it is to see, it’s even more difficult that you’re the one that’s experiencing it. Life isn’t all peaches and cream, we need to see the difficult side to it too. Especially when it’s a condition like yours that’s rare. Awareness is very important!
2026-03-06 02:29:29
6
✨NataliePaige✨ :
thank you for being so strong and brave to share what you're going through❤️
2026-04-19 00:37:47
1
Morena Díaz 😜 :
You’re such an angel and an inspiration for many people!!! Your soul is unique and invaluable, and your aura is so powerful. I Im sure you don’t know how far it reaches!!! Please don't let poisonous comments fill it with darkness...
2026-04-03 22:57:12
1
Becka Boo 💕 :
This is why it is so important to share this information, it might save someones life one day. 🩷
2026-03-06 19:41:03
2
ᵢzzy 💗 :
I really like learning about your condition through your channel x
2026-03-05 19:44:11
10
helloimaoibhinn :
I’m so happy you are able to get your message across 💕✨
2026-03-05 23:44:32
2
David Neve :
I'm not a medical professional or an expert patient. Just a guy that cares. I feel for ya evie
2026-03-08 15:28:33
1
SnazzyP :
they might not want to see it but we appreciate you sharing your journey and educating us ❤️
2026-03-05 20:24:59
3
Neurospacey :
You're helping our community more than you think ❤️
2026-03-06 00:09:24
3
elle_myroadtohealth :
Hard to watch you go through it all. But the awareness your doing and teaching… priceless! 💝
2026-03-05 23:19:26
2
Emmy 🦊🍎 :
i’m becoming a nurse so i can help people with rare diseases like dystonia. I’m becoming a nurse for you ❤️🩹
2026-03-07 22:03:57
3
Emillia Isabelle Sum :
We dont know each other personally, but i really wish we did. Your a fantastic Human Evie. You are loved by so many of us😭💚 You make the best of the way things have turned out And we are in awe of you. I am always cheering for you to get back up after an episode. I dont know how you do it, but I am PROUD OF YOU FOR DOING IT.
2026-03-06 00:19:59
2
💕 KIRSTY 💕 :
Keep sharing Evie, we all love you 🥰❤️🫶
2026-03-06 23:35:55
1
Pans.awareness.mystory :
That's my girl👏💞
2026-03-10 18:21:43
1
💜Ashlyn🪽 :
You don’t realise how much you’ve helped me come to terms with my disabilities and face the challenges in the nhs when they get things wrong ❤️
2026-03-07 00:07:59
1
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