@darcies_story: What a night we had at the DEBRA UK butterfly ball last night, held at The Landmark London. It was a privilege to be invited along, to share Darcie’s story with everyone. Speaking in front of 250 people isn’t easy, but Darcie has a story to share. It’s important to share what she has to go through on a day-to-day basis. Meeting others going through the same made us realise, we’re not alone in this fight. Last night showed everyone, how amazing the DEBRA charity really is. They have been instrumental to Darcie’s life, her life really wouldn’t be as comfortable without them fighting her corner, with us. We’re so grateful for the opportunity to attend🦋 #epidermolysisbullosa #DEBRA #EBawareness #EB #fyp