I'm fine. It's not that bad. I've dealt with worse. 🫣
2026-03-12 17:03:38
24
Kris :
it's going to hurt either way and I need to get things done.
2026-03-12 17:13:54
15
Pia J :
Push through it and pay up later.
2026-05-09 00:18:34
2
Lauralie :
I’m always so grateful for the rare day my pain is less. If the sun is shining i have hope.
2026-03-13 23:06:05
4
Paws for Love :
Are you real or is AI reading my mind. Sure would be nice if more doctors understood all of this. My labs, imagining and clinical observations prove my illness. Still judged heavily. Quality of life,0.
2026-03-14 02:42:33
2
love 🌛🌝🌜 :
"i don't want to go to the er bc they are going to judge me" "it will stop eventually"
2026-04-26 15:38:03
1
Moriah Backhaus :
The number one thing in my monologue, “is this normal pain or is something wrong?” For me it’s really a coin toss
2026-03-12 23:11:56
2
nancyleecorbeil :
all. I guess its just par.
2026-03-12 17:12:31
2
joyfullme16 :
“There are plenty of people out there who are worse off than me. I can do this.” This is me, every day. If I want a day to just lay around and sleep when I want or need to, I sacrifice precious time with my family, who work M-F and only have two hours an evening during those days, to see and do things with. I’m mentally and physically exhausted, meds do not work like they should, because…”There are plenty of people out there who are worse off than me.”😞
2026-03-13 11:21:51
1
TiaBugg217 :
Just let me keep lying to myself, ok?😂😂😂
2026-05-04 22:40:10
1
dacjmcs1 :
So I have autoimmune I fell at PT on Monday and still had to work so worked through Wednesday. Took today off interrupted sleep due to pain at 5am thought. I will get three small chores done. Fell back asleep woke at 9 am new thought. I am not getting out of bed. Everything hurts and I just want to curl in a ball. Our problem is how do we have a happy medium. I can’t spend my life curled in a ball trying to recover enough to do something when showering and dressing triggers a cascade of issues we have to push through.
2026-03-12 18:18:24
0
mel.i.3 :
I had a major flare up Sunday- still recovering from the flare up Thursday. Ugh 😩
2026-03-12 17:06:29
1
Travis_of_America :
I have only had two days in the last 30 years- that I felt amazing.
2026-04-25 07:35:33
0
dont judge the cover :
oops😅
2026-03-13 05:37:02
2
ViewableKitty :
How about I know this is gonna cost me a lot of spoons and I’m gonna pay the price in pain but if I don’t do it then who?
2026-03-13 15:05:34
1
julia24 :
I can fix this if I just find the right, exercise/herbal remedy/massage therapist etc etc
2026-03-13 04:06:08
1
SarahcSarann beauty studio :
Is it true or fact that Injecting certain peptides help with chronic condition s
2026-03-20 09:44:32
0
BeBe Kay :
My favorite is to tell myself it won’t always be this bad. It’s just right now and I just have to make it through the next 20 mins. Rinse and repeat until it subsides.
2026-03-12 21:55:07
1
Christine Feggeler Hoover :
All of the above. 😂😂😂
2026-03-12 17:22:59
1
Glenna Coopershear :
allllllll 🥰🤣🤣🤣
2026-04-26 17:38:24
0
M.I.A. :
We all keep the hope in our hearts while our ‘heads’ know the truth!
2026-04-26 09:10:30
0
christinegurbis :
I am in so much pain right now. I can’t even explain it. The pain scale is not built for people with chronic pain. Every single muscle in my body hurts.
2026-04-24 11:11:20
0
nycolef_5 :
What state are you in o would love to see you my case is very unique 🥰
2026-04-23 14:05:15
0
JennA🌺 :
Running out of spoons day after day.
2026-05-09 18:34:44
0
marykustra :
Very nice to address it? lol..My Mindset here is definitely try to accomplish and plan on a rest day afterwards.. This is me here every single day? LOL 😂 Have to be able to try my best to make a dent in my list of things that have to get done? Like laundry here because it can pile up and I am a clean person! But, laundry here can get heavy also the groceries and lifting it, carrying it especially the waters and that I try to grab a young worker to assist me with getting it to the car and take it water by water bottles until I get to a lighter amount..or, depending on the budget I have to buy smaller anounts like a 6pk and be able to get it into my place..So truly grateful for all of the cites and clips of really needed info here on our conditions and how to function daily? Have to manage my situation because I have been dealing with this since the summer of 2007..Alot of people that suffer also suffer from depression and anxiety bigtime..I fell into this shortly after my diagnosis..I manage always always a smile 😁 daily? LOL 😂.. There is absolutely NO shame in having to admit that I got very depressed..Had to walk away from med school, and also school for law enforcement/security? That was a huge deal, blow for me.. School was everything here.. But, I am too old now and I have come to terms on the matter..I have my SSI and a small part time job doing security and I love it..Have been doing this job seriously for over 16+yrs now and I am going to try to get a CPR course under my belt at least..That for me would complete the list I have.. Thinking about Fall for the classes.. I really does help me with my condition and my mindset..It took me awhile to get to this point/place and I am able to sleep better at night, ya know? Please keep this cite here going ok? Absolutely want to know things and maybe help with anyone else who is going through this stuff!
2026-03-12 17:56:03
0
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