@justagirlwithsps: For starters- NO I did not punch my friend HAHA. When my body goes limp It goes either into an crazy contortions or extreme movements- which ended up hitting it out of her hand. Before that I had hit my head on the bedside dresser so we moved me more to the middle of the bed. I have been in severe pain since then all day. Hopefully insurance approved my Rituxan next week, I can’t keep doing this, I’m scared of going to the hospital again:(. #stiffpersonsyndrome #painful #sps #struggling #celinedion

justagirlwithsps

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Region: US

Saturday 14 March 2026 05:34:52 GMT

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Comments

Connie 🏳️‍🌈 :

It’s heart breaking to know you (and others) experience these episodes due to SPS. 💔 Your work to raise awareness for this disease is admirable. Sending you good energy!🫶

2026-05-08 13:06:42

211

Hattie & Rue :

I’d never heard of SPS before today. I’m so sorry this is something you have to deal with and incredibly proud of you for being brave enough to share something so deeply personal to educate others.

2026-05-13 09:42:18

22

Dawn M :

I'm so sorry girl that looks painful! Thank you for bringing awareness to SPS. This video is definitely eye opening.

2026-06-04 20:50:12

1

Jenharts1 :

Thank you so much for being brave enough to share such a vulnerable and personal piece of your journey with us. As a nurse it's incredibly helpful, if I ever come across a patient with SPS I will remember you and what you taught me about living with this condition. Stay strong my zebra friend 🦓💛

2026-05-08 23:37:00

106

KM Reposts :

JJ, your courage and vulnerability to post this in order to raise awareness for SPS is admirable. I hope it makes it to the right respectful eyes. 💛

2026-05-08 05:52:59

103

Langalear :

First of all, you have got to be the most bravest person I’ve ever met to post this to teach us all what SPS episode is like just know that my thoughts and prayers are gonna be with you. Thank you again for teaching us.💛💛💛

2026-05-08 18:31:20

40

Erin Nicole :

Im so sorry. That looks incredibly painful. Im sending so much love, healing and prayers that you get your medicine.

2026-06-04 16:42:43

1

debbiewisdom8 :

So sorry that you have to go through this. I was unaware that SPS existed. Thank you for bringing awareness to this.🙏

2026-05-08 17:19:11

76

Kirsty :

How incredibly brave you are to post this and make people aware what life is like with Stiff Person Syndrome. ❤️

2026-05-08 10:27:43

107

Gen Xistential Crisis ✝️🐾❤️ :

Thank you for sharing your experience and raising awareness for SPS! Stay strong!!!

2026-05-11 18:41:44

23

RitaT :

Sorry you’re going through this! Sending you a hug and a prayer 🙏🏾💛

2026-05-08 11:08:37

52

Gemsue ✨♊️❤️🖖☯️📎 :

I had never heard of SPS! THANK YOU for your vulnerability in teaching all of us!! Blessings 💕

2026-05-18 17:57:49

6

Light Language Unveiled :

Oh my… I appreciate you sharing your struggles. I hope you get the care, medication and support you need to have the quality of life you deserve. Sending hugs from a distance

2026-05-16 01:02:11

9

Searingedge :

Such a devastating condition for someone to deal with. Prayers for you to have strength and healing.

2026-05-11 18:40:04

16

Britt 🌻☀️ :

I'm sorry you are going through this! Hugs! 💛

2026-05-08 14:07:38

28

Wonder :

thank you for your courage and voice to help raise awareness!!

2026-05-08 17:06:58

30

Divergent Viewpoints :

Thank your for sharing and educating us all on this condition. I know that can’t be easy and we appreciate you ❤️

2026-06-04 12:50:17

1

Nola Nostalgica :

Thank you for your courage 💛🩷

2026-06-04 03:18:43

1

Ummnah8 :

This is so strong and brave of you.💜

2026-05-08 17:08:37

20

Adam :

thank you for your strength and courage to share: i know it’s not easy. keep spreading awareness and love

2026-05-08 17:07:45

22

BooAuggie💙 :

Thank you bringing awareness. Sending you positive thoughts and healing energy.

2026-05-08 20:01:08

17

Luke G :

I'm so sorry you have the path of dealing with this. Thank you for sharing your story with others who can connect and find comfort,and for raising awareness. There are some wonderful people in this TikTok chronic illness community looking for creators like you to relate to and learn from, and I appreciate you so much for helping.

2026-05-08 17:53:43

19

Cailineire :

Thank you so much for bringing awareness to SPS! ☺️💖

2026-05-09 07:34:01

17

Isabelle-c-comme-ça🇨🇦 :

I am so sorry you had to go through this. I don’t know much about that syndrome, thanks for educating me.

2026-05-08 18:23:59

19

Spirit :

thank you for raising awareness about this! its so important to normalize these things and talk about them! you are doing amazing work sharing your experiences and I wish you nothing but love and light in your life

2026-05-10 19:09:25

13

To see more videos from user @justagirlwithsps, please go to the Tikwm homepage.

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