@grahamquaker: #greenscreen #hEDS #hypermobileehlersdanlossyndrome #potssyndrome #dysautonomia https://pubmed.ncbi.nlm.nih.gov/40972649/

GrahamMedicalConsulting
GrahamMedicalConsulting
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Tuesday 17 March 2026 19:45:29 GMT
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princessmegs2603
Princessmegs2603 :
so would this explain why Mestinon is helping with my POTS symtpoms? I have Hypovolemic POTS, MCAS, and highly likely that I also have hEDS. I have been on max dose Ivabradine and Midorine for the past year with very little, if any, relief of symptoms particularly the extreme fatigue. They started me on Mestinon about a month ago as a last ditch effort and it ironically seems to really be helping with my fatigue symptoms and even my heart rate, but none of the doctors can explain why its helping. Are you able to shed some insight?
2026-03-17 23:00:34
2
ivo4147
ivo :
If you are able, I would love a referral to someone in East or southeast Pittsburgh. I am desperate to be diagnosed at 52 when I can no longer do party tricks. If you know of anyone, please pm me.
2026-03-22 23:49:31
0
copingwithoutspoons
Shawn Davis | LCSW :
why is the most research assuming autoimmune and not also looking at immune system reacting to the environment? we literally don't live in a sterile environment and looking at environment was a game changer for me
2026-03-19 12:11:08
1
kayristina
Plotwist :
Only tested my C3 and C4, and both low. No autoimmune but do have EDS
2026-03-18 19:51:04
1
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