@chronic.kaleigh: Fortunately now that I’m medicated, my resting heart rate is much lower (about 60bpm or so) STILL SYMPTOMATIC THOUGH #chronicillness #chronicallyill #dysautonomia #dysautonomiaawareness #pots
My cardiologist missed my POTS for a decade. They’re not trained to watch for dysautonomia.
2026-03-20 12:04:45
341
mmcbridemd :
“That can’t be right. It says 198/130.” “Oh yeah, my dysautonomia does that. Hold on, I’ll bring it down.” (Deep breathing, valsalva) “Now it says 104/60?” “Yeah sorry, it does that sometimes.”
2026-03-21 03:27:57
87
Claude Hamesh :
The other day a nurse congratulated me on my “low blood pressure” it was 86/67…
2026-03-19 20:16:10
267
📚 AlyssaMarie 📚 :
Me the other day fresh out of the shower and getting into my car. 😭😭
2026-03-19 19:52:51
127
adelia ♿️ᢉ𐭩 :
i relate to POTS syptoms but my resting heart when i lay down is 60 and when i’m up it’s 110. at 120 i usually pass out. i’ve heard people with POTS have a lot higher so i’m wondering is it still possible? should i still ask for a tilt test?
2026-03-20 14:39:02
18
Willow & Maple :
lol at my last cardiologist appointment there was a med student there (and it was his first day in the field). The doctor made the med student manually check my heart rate and the med student genuinely thought he was doing it wrong because it was so high 😅😅
2026-03-19 23:12:57
48
chronicallykylee :
Whenever they ask me “Are you nervous?” I go “should I be, what are you going to do?” 😂
2026-03-20 06:15:02
21
alex ⋆。𖦹°⭒˚。⋆ :
just got diagnosed with pots after almost 2 years of symptoms, i was told this was normal…….
2026-03-21 14:23:59
10
Chronically Barbie :
This is me but with my low blood pressure 😂
2026-03-20 21:56:28
5
Emily Anderson :
my BP was 180/98 & they were so concerned! redid it less than a minute later & it was 102/69 & my heart rate was like 105
2026-04-27 22:28:18
4
Haley Wheeler :
I JUST got my dysautonomia diagnoses and cannot believe how many similarities I've found in the 10 minutes of research I've done into this
2026-06-28 16:34:34
0
Doctor_Star :
When you go to the cardiologist specifically and they ask if you're anxious for the high heart 😭 like no that's one of my symptoms which is why I'm here???
2026-03-20 11:20:51
19
EtheREALove90 :
I’m a medical assistant at a doctors office and once I heard that the nurses send patients to the ER for heart rate of 120 and over consistently. I was like wait what? I hit 140 everyday and sometimes 160 sustained while standing. I am diagnosed.
2026-03-19 21:50:57
26
AshleyNichole :
Mine is normally around 120 lol
2026-05-04 21:31:38
2
Ellis The Oracle :
Bro. My heart rate over 100 is always dismissed. Only thing I’ve been diagnosed with for physical health is IBS. I had to figure out the other shit on my own
2026-03-19 21:43:33
1
:
Like tell me why I went from 65 to 125 just getting out of the car
2026-04-01 23:25:18
5
𝓛𝓲𝓵𝓵𝔂 🐥🪽 :
“Are you anxious” Question because you’re heart rate is high sitting 🥀💔
2026-03-20 15:05:59
15
Cassandra 🍁 :
Any time I get my heart rate taken by a medical professional who doesn't know me I have to tell them that over 100 is super common for me and that it's fine and I'm not dying.
2026-03-20 01:38:14
11
raegan_joelle :
Few hours into my day at school
2026-03-23 18:31:56
6
Jay Carson :
my HR being 120 sitting down but "its probably the caffiene." no its because I stood up to walk in here.
2026-04-16 05:22:54
3
Shayla :
The nurse took my hr not knowing I have POTS and she said “ummm is it normal for you to have a high heart right” I said yes, she says “wow it’s um 165” (I was sitting)😭
2026-04-04 05:44:12
4
Cheyenne :
my resting is 66 but the moment I even just stand itd be 120....I started timolol and it's helped immensely. I still am dizzy and lightheaded constantly but no more racing heart and palpitations
2026-05-01 12:50:40
2
Sarah :
How suddenly does this change happen?
2026-05-04 22:55:36
1
BubblesTO :
I got this experience at my neurology appointment. hr was 120 and the nurse seemed very concerned. she also seemed thrown off by how nonplused I was by it
2026-05-11 06:15:36
2
enewton02 :
can pots also cause a higher resting heartrate slightly as well as an increase when standing
2026-04-17 18:48:51
0
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