Yeah, my IBS turned out to be gastroparesis. IBS means I don’t know what’s wrong with you and I’m not gonna keep looking
2026-04-16 21:02:23
94
Eirelyn *•.*+ :
My “IBS” was endometriosis and adenomyosis
2026-03-25 01:41:45
1700
Elizabeth Bryant :
ibs is a symptom not a diagnosis
2026-03-25 02:49:59
2338
Elizabeth’sStage4Story :
My IBS turned out to be stage 4 colon cancer
2026-03-25 04:43:32
727
Evripidou :
ibs is "we dont know, we give up on you". thats how i felt
2026-04-01 15:35:10
291
ArabellaMay :
I've had IBS-D since my teens. As a 25yr old woman, I've just accepted that I will never have normal bowel moments, I can either take Imodium constantly or risk not making it to the bathroom, and I will have abdominal cramps daily. Any time I ask for help, it's just "take imodium".
2026-03-25 22:47:15
68
Hannah :
my ibs was crohn’s disease so don’t keep fighting for answers!!!
2026-03-26 19:37:25
362
Em 🍉 :
my mom got diagnosed with IBS almost 15 years ago. she got diagnosed last year with chron’s disease 🙃
2026-03-25 01:47:32
136
Caitlin :
It wasn’t just IBS… it’s Hypermobile Spectrum Disorder/hEDS
2026-03-24 20:39:46
146
jaz :
my ibs was multiple pelvic floor prolapses and gut muscles that literally don’t work. i cried after i got testing done and they told me it wasn’t just in my head, there was actually a fixable issue
2026-04-01 00:30:40
16
TheWhiteCrayon 🇺🇸🆘😭 :
This girl just hit the nail on the head. IBS just feels like such a dismissive diagnosis. And treatment options are truly limited.
2026-03-26 13:10:28
336
kivsush_makes :
I was diagnosed with IBS almost 10 years ago after all of the tests came back normal. 1 month after I started getting treatment for endometriosis (4 years ago), 90% of my gastrointestinal issues disappeared completely. I went to a GI doctor for a follow up and told him about it and he said to me "wow, I didn't know hormones could affect this" and sent me home with a "I'm glad you're feeling better"
2026-03-24 21:56:47
132
Mel :
I miss my life before ibs, I never had to worry about what I was eating/drinking and never needed to go in public 😭
2026-06-28 09:10:55
21
twilight96 :
i think it's more the it's not treatable part that's disapointing like with heds or gastroparesis or endomeriosis etc we're happy and relieved to finally have a diagnosis but at thé same time it doesn't change anything we still have to live (survive) with it
2026-03-24 23:17:23
125
L :
Me with all the syndromes and no root causes or solutions!: EDS, POTS, MCAS, IBS.
2026-03-25 14:24:27
69
tiktokuser749364929 :
IBS and anxiety here 🤚🏾
2026-04-18 16:08:40
25
theygolas_ :
They have literally always said “there’s nothing we can do for you.” Okay cool I will just continue having horrible abdominal pain forever 🧐 when they try to send me back to GI I tell them not to bother.
2026-03-25 16:37:01
194
Jonesy :
I would love to see Dr. Mike for all my problems! Ibs, Crohn’s, HS, graves, thyroid eye disease, liver disease with fibrosis & complex cysts, spots on lungs. I’m sure I’m missing some. I’m exhausted & tired of being shuffled around.
2026-03-25 03:30:58
8
Dpc1 :
On the flip side with Crohn’s being the primary dx, having anxiety & depression are completely ignored & overlooked. Personal experience.
2026-03-25 15:32:10
7
ash :
yeah wasn’t IBS, it was hEDS, POTS, dysmotility, and bile acid malabsorption
2026-03-25 04:34:52
493
Attic_ghost :
Yeah my “IBS” was a severe allergy that went undiagnosed for 21 years…
2026-03-26 09:31:51
61
Tryingmybestrightnow 🆘🇺🇸 :
My IBS was food intolerance. Dr. Had me try Dairy free and allergy testing and it turned out I had a type 4 reactivity disorder that was difficult to link up the symptoms to the allergy!
2026-03-25 13:44:39
9
silly_lily.07 :
my ibs turned out to be a rare illness called median acute ligament syndrome.
2026-04-02 21:21:22
9
Death Queen :
IBS and Pelvic Floor dysfunction =Endometriosis
2026-03-26 08:27:23
6
unfortunately.rach :
my ibs turned out to be lymphocytic colitis. it took 15 years to get to that diagnosis 😔
2026-04-03 04:48:35
40
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