Reka Janisse
Region: US
Wednesday 25 March 2026 12:05:36 GMT
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Dani :
I get dystonia from my FND
2026-07-08 16:37:59
1
Sunshine Sunday✌️❤️😁 :
When I was diagnosed with fibromyalgia the neurologist diagnosed me with dystonia too. I have it in my neck really bad
2026-06-17 13:37:07
2
CJ&J Hayman :
You’re not the worse off in the world?. Concentrate on what you can do?. Smiles and cries are in your control, work it out hunny
2026-03-29 07:13:22
6
Jamie Ryne :
We found some sweet bee magnesium butter for my dad he uses at night. It’s actually helped
2026-03-26 00:46:48
17
Roscoe :
I find that my carbidopa levidopa intake affects my dystonia and sometimes overlaps with dyskinesia making it very painful to walk like you are demonstrating! No bueno.
2026-03-25 13:48:25
9
MyHappyNewborn :
I have a hand tremor on my left hand, my left leg twistes involuntarily and the toes on my left foot cramp so bad. I’ve had this for years!! I never thought they could be related to a disorder. I can’t believe that TikTok may have answered questions about my health that drs haven’t addressed in forever
2026-05-03 03:05:31
1
Judy Z’s Interiors :
I was just diagnosed last August and I’m still having symptoms come up. I do go for Botox every three months, but most of mine is in my shoulders neck and head. I’m dealing with being very dizzy all the time though trying to figure that out.
2026-03-25 23:12:41
5
Shérine :
That’s weird because the doctors I saw told me I have dystonia in my feet but it’s not the same as yours It’s at the back of my feet I stand only on the front of my feet and not on my heels There’s a tension, like my Achilles tendon is shorter on one side wth
2026-04-10 16:10:39
2
highestraine1 :
It happens to me too sometimes
2026-07-08 07:56:56
1
DawneMez2013 :
My husband get this .. his toes curl upward esp while driving causing his fuel pedal leg to come off the fuel.. I’ve always had this tho even as a child and it can be horrendous.. hugs
2026-03-25 13:16:19
5
QueenB :
has been happening to me calf leg very painful used to think it's a muscle pool
2026-05-19 03:42:08
3
melissa_dumdum :
I have it in my right arm /neck
2026-03-25 22:11:52
4
Santy :
Have them too acupressure really helps
2026-03-25 14:03:40
3
michellegriffin653 :
Nope I get this a lot!
2026-03-25 13:02:53
5
MichalArchanjel995 :
show us more
2026-04-09 09:33:08
2
Tratin51 :
hi does this feel like youre muscle is going into a spasm and its very painful until it eases ? x
2026-04-05 22:52:34
1
Pascal :
ça m'arrive très souvent et ça fait très mal
2026-04-08 14:09:14
1
el alber :
una oportunidad para poder charlar
2026-04-18 04:50:47
0
Mimmo :
Well done 💓
2026-04-08 07:32:30
1
PJ :
yes ooit painful 🥵
2026-04-08 05:30:46
2
Beth Wilson DiFebbo :
I have Ankylosising spondylitis and deal with this. its horrible. People tell me to take magnesium but my doctor tells me not to. 🤷🏻♀️
2026-05-01 21:52:12
1
Lisette :
Just had a TKR Friday on the side I have tremors. Cramping is wild.
2026-03-25 14:35:49
2
rs :
My feet. Oh the feet. The pain. The twisting of the toes. The muscle pulling. I def walk strange at times. I recently added amantadine and it really helps. Fighting your body all day is just exhausting. And most nights…holy moly. Check out amantadine….it might help.
2026-03-27 00:36:24
2
Teresa Paonessa :
With gym training you don’t find it helps control this happening ?
2026-03-25 16:46:20
2
Panici :
I do!!! Very Painful! I have to SIT ON the foot to relax it before I can walk again! If it can’t relax, I try massaging !! It’s annoying!
2026-03-25 19:35:42
2
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