Also, not sure where you are, but we are in GA and in Atlanta at the Children’s Hospital of Atlanta (CHOA) they have started a whole division for Pandas… we have not been but just wanted to tell ya as another resource
2026-03-28 13:51:52
41
Desiree :
That is SICK to dismiss you all like that. I’m sorry you guys experienced that on top of everything else 😢
2026-03-28 04:02:38
18
Shira Weiss :
How did the IVIG do?
2026-03-28 20:57:54
5
redeemed.by.jc :
🌸Heavenly Father, we pray with groans and screams, please hear our prayers for healing for this young girl. Strengthen the family, in Jesus name, Amen.🌸
2026-03-28 17:45:03
3
Amanda… :
Put go fund me in the bio link 🔗
2026-03-29 18:08:45
1
dianesimmons522 :
Contact Dr. Phil
2026-05-14 13:06:59
1
Jentry :
I’m sorry - gaslighting in medicine is awful! You are an amazing dad! Keep fighting! Prayers for help and healing!
2026-03-29 03:13:39
33
AshleyAyres ⭐️ :
Not sure if this would help but have you looked in the hyperbaric treatments ? We used Dr Harch in New Orleans and it truly helped with the the inflammation and has helped In his recovery. Sending prayers 🙏🏻
2026-03-30 05:11:38
2
Poetologie❌️ :
So sorry. My son has PANS. We did IVIG for 2 years & it helped a lot, but then my son got COVID & it ruined the progress. We can't afford it/the trips anymore, had to 2nd mortgage house & used all savings. All medical professionals need to recognize PANS/PANDAS & start helping instead of gaslighting. We need medical insurance to cover all treatments & funding/research ASAP. You are an amazing advocate, thank you & your daughter for all you're both doing! I hope she's in remission soon. Sending faith & pixie dust. 💚🧚♂️💚
2026-03-31 20:28:08
2
🌸Jennifer Neves🌸 :
How dare that doctor so sorry
2026-05-10 03:53:26
1
GenX Daily Finds :
I can’t even imagine the frustration that you feel. I would love to meet this ER doctor in person and ask him if he has kids and how would he feel if this was him and his daughter
2026-03-30 13:55:38
1
Yvonne’s World 💫 :
My daughter has new symptom laundry loop!
2026-04-30 05:41:15
1
Alli💙 :
I’m so sorry. She deserves better. You are such a fighter for your girl ❤️
2026-03-30 15:51:29
3
❌ Laurie ❌ :
My gosh that makes me so angry that a doctor would say that! Praying for your daughter! You’re doing great!
2026-04-03 00:50:50
1
Linda Lane :
400 not 40
2026-03-30 22:00:48
1
Nakay :
Prayers
2026-04-18 22:55:45
1
Carol :
Father, please make a way for all her needs. 🙏🏼🙌🏼🙌🏼 🥺
2026-03-30 23:27:09
2
Sparky :
God bless you bud!! Breaks my heart! We took our daughter with Pans/Pandas to a neurologist and he told us in front of my daughter, everyone has anxiety!! Thought they may have to call 911 with my wife’s reaction…
2026-03-28 13:50:05
3
⛓️💥Cadena ⛓️💥 :
They can do home EEG if that’s easier for her, unfortunately my daughter has had all types of EEG’s.
2026-04-01 05:19:06
1
Kelly Hernandez45 kelly :
GOD BLESS YOU HOPE YOU FOUND SOME ANSWERS
2026-03-29 20:29:26
1
Jennifer Chomout :
Someone help this poor girl 🥺🥺
2026-03-31 12:43:28
1
Sherri Pebbles :
I am just so sorry you are going through this! I pray God heals her totally and completely! I pray that you and your family find peace and comfort.
2026-03-30 04:59:16
1
Trina :
Immunoglobulin IGG, IGA, IGM bloodwork normal?
2026-03-29 21:52:24
1
Shira Weiss :
Our EEG came back normal. Still has PANDAS.
2026-03-28 20:58:52
1
Yvonne’s World 💫 :
That’s terrible
2026-03-28 04:07:57
1
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