📚TheEndoBookNook📚
Region: GB
Saturday 28 March 2026 15:16:56 GMT
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izzy🩶 :
I have these same symptoms apart from the first one I dont feel the urge to go at all like full stop
2026-03-29 14:58:42
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Lyn :
I am so sorry. I work with a support group from time to time and hopefully having the diagnosis helps. I am told not knowing is the worst
2026-03-29 11:43:23
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Samantha💛 Wee Warrior :
never more relatable post have all the above sorry your experiencing it too ❤️
2026-03-29 02:04:03
4
Ovary-Acting🎗️💛 :
I see you and know exactly how you feel, we stand together always - Siobhan💛🎗️
2026-03-30 08:00:36
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Missy :
So what treatment do they give to easy these symptoms once your diagnosed
2026-03-29 09:00:58
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🗝️🐦꧁ Imogen ꧂🦭🗝️ :
I get all these
2026-03-29 22:57:45
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Pandanom01 :
I constantly felt like I had a bladder infection. It turned out I had endometriosis, including on the ureter from my left kidney to my bladder, and that caused the pain when I urinated because it produced the inflammation. I also lost a peace of my colon. You are a fighter!
2026-03-28 16:22:04
3
Cora 🦑 :
I went into full bladder retention April 1st 2025, I now have a SPC. I have a diagnosis of endometriosis prior but getting them to listen to me that I could be endo they just ignore it and instead I have a diagnosis of Fowlers syndrome.
2026-03-28 17:25:34
2
MemyselfandI :
I hear you 💛. Fought years to be told 'it's all in your head'. Aged 32 had a total hysterectomy and unfortunately because it 'was all in my head' .. no kids. Now 60 and I still blame the doctors for not listening.
2026-03-28 19:45:58
1
Nicole Maguire :
My bladder and bowl are stuck together and my colon has wrapped around my womb and flipped bk on to my cervix this isn’t to b messed with but doc has very limited help
2026-03-28 23:54:39
1
Mila :
Stage 4 endo girlie here. I can't feel my bladder anymore and endo has spread up to my ureters, blocking both kudneys and now I also have chronic kidneys disease. Been on the 'emergency' surgery list for almost 12 months with only stents in my ureters to ease the blockage. Need total hysterectomy (for adenomyosis), bowel resection and bladder and ureters reconstruction. Not sure if I will make it to sugery day nevermind through 9 hours of surgery with a minimum of 4 months recovery period 💔💔💔
2026-03-30 09:12:50
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Lucia 🇪🇺🇪🇸📚 (isilen) :
I'm sometime dear I have it as well. because there are times I spend the whole day going to the bathroom but I'm also autistic and system here is so out of day and disconnect between buildings for my things that I don't know anymore.
2026-04-02 13:49:30
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HDWoods :
oh god! I feel for you! I have endo. not that bad. one surgery got the worst of it. hope you can get thr treatment you need soon.
2026-04-02 18:20:46
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