Dr. Grace | hEDS, pelvic floor
Region: US
Thursday 02 April 2026 23:43:02 GMT
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tammydearmond :
I am 5’3 and have brachydactyly type fingers. My daughter is 5’9 and is the opposite. Both HEDS.
2026-04-03 21:09:47
352
🦀 :
i have arachnodactyly, AND brachydactyly in my thumbs and currently going though the diagnostic process !
2026-04-07 18:59:08
40
Bex :
Even my baby hands are part of my EDS? Are feet the same?
2026-04-04 02:24:16
395
Snowy - AuDHD :
I have small fingers that fit in child sized gloves and it’s the reason I have an iPhone 12 mini
2026-04-03 13:44:05
398
•Chronically•Jade• :
I have this. And I couldn’t play guitar because of it
2026-04-03 01:25:25
232
char :
hypermobile and have super long fingers, i’m 5’5-5’6
2026-04-08 01:19:26
32
vanessa🐆🎱🍒 :
Im a ring size 4, thats the average ring size for a 7-10 year old🫠
2026-04-29 18:33:45
8
strawbabi :
my hands arent particularly small but they are SO wrinkled/creased
2026-04-03 13:53:37
22
Thebrilliantbrittany✨💕 :
I have hEDS and my hands are smaller than some children, I also have brachydactyly type d.
2026-04-03 21:29:26
114
Brittanyann🆘🇺🇸 :
I’m 5’3 and my fingers are like small sausages. But boy can I bend the heck out of them lol
2026-04-03 14:30:31
35
Felicety ᛑᛗᛛ :
I have small extremities. feet, hands, ears, nose. my hands look in proportion but they are small for my height. same with my feet. i often think I look like I'll tip over
2026-04-04 10:54:35
46
Lora Gibbs :
I’m only 5’8” but I can palm a basketball. I also have 35” inseam and a child sized torso and I’m pretty sure my wingspan in taller than I am. I’m super hypermobile I feel like I need genetic testing
2026-04-03 14:51:25
26
Vicki Brenner :
Thank you for this! I always wondered why I had small little hands with lots of wrinkles. Always. My mom and sister have beautiful long fingers
2026-04-03 00:31:54
62
Claire._.bear22 :
I have short fingers BUT I’ve always considered myself to have “piano hands” where my pinky and thumb can stretch to almost a straight line
2026-04-03 20:32:46
10
Maddiegotlost 🦓 :
I’m 5’4 with hEDS, and my whole body is short and stumpy.
2026-04-27 16:17:38
8
Demi :
I mean I'm 5' but my hand can't play an entire octave on a piano and I feel like I should at least have that length, I also have a ring size of 4-6 which definitely isn't normal.
2026-04-04 07:57:34
6
Amberb111999 :
Me! I have small hands but double jointed fingers. Small thumb. My wrist are also small and always painful.
2026-04-03 12:08:20
25
gz🦩 :
I'm 6'! That's why I wasn't diagnosed with hEDS until I was 50, because I blamed everything on being tall, because I knew nobody else who was tall (except my sister, and she's nine years older and we aren't really close).
2026-04-03 01:37:38
0
Ariel Tonks :
I have small fingers with massive frog palms. When I was growing up, everyone kept saying my fingers should be longer for my palm size. xs glove size fingers with a medium sized palm. can rarely find gloves that actually fit.
2026-04-05 07:50:17
7
antareswithalibrary :
I have very small hands, along with incredibly tiny adult teeth. I'm very self-conscious about it
2026-04-03 21:03:41
8
Monster :
I have brachydactyly of my pinkies and really long middle fingers. EDS is so fun!
2026-04-04 01:20:21
16
Res :
My bones are extremely dense. Both nurses and doctors used to get extremely surprised about how much I weighed compared to how I looked. My weight was such an insecurity growing up. Not my size, but the weight itself. I wasn't diagnosed at the time.
2026-04-03 16:37:57
8
Mary-Louise :
Also, inflammation (from all the micro tearing) can cause swelling. Left me with permanently swollen fingers.
2026-04-03 12:06:26
8
hkrapac :
I have the shortest fingers, my pinky fingers look like they stopped growing when I was 5.
2026-04-03 00:38:30
6
My Name is V 🧿 :
I have long/narrow hands but they’re tiny. So are my feet. I’m 5’7” and we’re a 7.5 - like my body comes to a point at all ends.
2026-04-03 01:23:23
10
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