@esophagal: EDS patients often describe very similar GI symptoms in clinic. #EhlersDanlos #GIClinic #MotilityDisorders #Gastroparesis #POTS

Esophagal❤️Gastroenterology NP
Esophagal❤️Gastroenterology NP
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Region: US
Saturday 04 April 2026 02:33:32 GMT
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courtney_snailum
courtney_snailum :
Don’t tell me, tell my doctor.
2026-04-04 16:46:12
568
hoqe55
Rimi Hoque :
same 🥲 it’s not talked about enough how much GI symptoms impact EDS… like it’s not just joints, it’s your whole system—bloating, nausea, fatigue, feeling off all the time. I used to struggle daily and felt stuck. then a friend told me about Eat Like A Woman Protocol by Loren Green and things finally shifted—30 lbs gone, way more balanced, digestion feels so much better now
2026-04-08 14:45:06
217
kyoshiwinchester
KyoshiWinchester :
My GI doctor refuses to believe there’s a connection between ehlers danlos and my stomach issues😔 can barely eat anymore
2026-04-04 11:46:54
330
blessedmommyofboth
🩵 MarvelQueen89 🩵 :
I am working on getting eds, pots and mcas diagnosis. I have all the symptoms and have idiopathic gastroparesis
2026-05-27 18:05:21
3
breezyb320
Bree :
What about hiatal hernia and severe reflux?
2026-04-04 22:30:58
23
dollierose0
Dollie Rose :
What about aspiration or frequent choking or food/pills getting stuck!?
2026-04-06 19:27:54
39
callmekillian
K ☀️ :
Girl did you read my chart?? My fyp is getting too specific 😳
2026-04-05 02:28:31
64
kristinakruse29873
Kristina Kruse968 :
I am diagnosed with Hypermobility spectrum disorder and I have also been diagnosed with....gastroparesis, GERD, Cyclic vomiting syndrome, trouble swallowing and severe constipation.
2026-04-05 03:01:45
20
jovolatile
Jo :
I have hEDS and IBS. I experience most of what you mentioned and my stomach is loud after I eat or drink anything. I feel very full for a long time after what most people would consider a regular meal amount. If I have that amount, I might eat once or twice (if I'm lucky) a day. I can eat more if I have more "snack like" amounts of food throughout the day.
2026-04-05 00:46:42
13
sandstorm940103
sandstorm_72 :
I've had diarrhea (dx IBS) my whole life. After having long Covid I developed gastroparesis, dysphagia and severe constipation. Developed SFN, worsening dysautonomia and MCAS as well. Then found to have a large spinal cord syrinx and tethered cord. Gotta love EDS. Many co-morbidities that all affects GI tract.
2026-04-04 03:49:47
29
lara.crofty
lara 📎 :
how can i stop feeling nauseous all the time if every gastroenterologist says i’m “normal” after doing colonoscopies, endoscopies, gastric emptying scans, lab work, etc
2026-04-07 22:47:24
9
violetbuckbeak
violetbuckbeak :
I've 4 rounds with GI Dr's and they all end up the same way. They put through all the tests that show nothing wrong and then say well we dont have a diagnosis so we are just going to treat your symptoms but the treatments are worse than what I deal with on a daily basis so I stop going back until it is unbearable again and try again...this, this sounds like my symptoms though...maybe its time to try again.
2026-04-04 21:16:52
8
georges_wild_world
georges_wild_world :
As opposed to my gi who said connective tissue disorders have no effect on the stomach and he doesn’t like the med for gastroparesis so he doesn’t test for it.
2026-04-05 02:08:57
9
still.just.syd
still.just.syd :
constipation my whole life and intense nausea and acid reflux
2026-04-04 19:05:21
41
diarrheagirl111
shea🍉 :
not to mention the fact that every test is done while fasting. my problems are when i EAT!!!
2026-04-05 20:19:27
8
jamie._.75
Jamie💜 :
I had a scope done bc they thought I had gastroparesis. the Dr said oh your esophagus is just twisted AND THATS NORMAL. like whaaaaaat. could have saved me years of suffering w undiagnosed EDS
2026-04-04 13:01:29
5
melindadonahoe
Melinda Donahoe :
Add vascular compression syndromes
2026-04-05 03:24:01
7
danid0919
danid0919 :
I have severe EDS-POTs and MCAS and have MALS also connected
2026-04-05 02:23:18
9
awaytome
AwayToMe :
My neurologist had to be the one to prescribe reglan for gastric dysmotility and it’s helped so so much 😭
2026-04-04 17:34:32
8
huskerred2022
Kristin 💟 :
So nauseous! 😩
2026-04-05 02:14:28
5
motherofshepherds23
Miranda :
Thanks for reminding me to take this Cromolyn sitting in front of the food I already started eating 🙈🙃
2026-04-05 02:32:45
6
sermeyeasartitsticworld
sermeyeasartitsticworld :
Can you tell my doctor this please cause I’ve been gaslit my whole life
2026-06-12 18:00:26
1
fullmetalbeotch
🧚🏼‍♀️🧚🏽‍♂️ :
Treating my MCAS has improved my gi symptoms so drastically. Only took 30 years to find a treatment that’s successful
2026-04-05 05:44:47
1
amandagardiner33
amandagardiner33 :
Difficulty and painfu lSwallowing and feeling like things are stuck and won't go down is a big 14 me....
2026-04-11 19:02:02
2
trusttheprocess31525
trusttheprocess31525 :
I wish doctors in my area had more training/research/exposure to hEDS. Having constipation my whole life has been crippling. It’s not just a “take morals daily” kind of symptom for me
2026-04-22 23:07:49
1
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