On3TuffCookie
Region: US
Saturday 04 April 2026 15:39:48 GMT
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Yumeka Black :
you need salt.
2026-04-04 20:40:11
8
peachii ! :
all the time. i’m actually shaking really bad rn because i had a tough night and my nervous system is extremely unregulated at the moment + a weather change has got me allll kinds of messed up 😭
2026-04-04 16:38:28
20
Ivyunknown :
I'm so tired of tremors. Mine are worse on my right side than my left.
2026-05-22 13:37:09
2
Redvamp Bindery :
Yes! I find for me they tend to be connected to a random adrenaline dump/surge. HyperPOTS is such a gift. 😖
2026-04-04 20:38:18
14
zoeygemsreads :
Yes! Check blood sugar when this happens if you haven’t yet. Mine turned out to be paired with low blood sugar
2026-06-07 01:05:55
2
sweetgamber :
yep, eye twitches too
2026-04-04 19:37:50
6
Lillie Dae :
Yes usually when I need salt. I have salt deficiency and am hypermobile w suspected EDS. I also deal with MCAs
2026-04-06 22:10:30
4
chimmy khadijah ❤️ :
anyone take famotidine for heart rate?
2026-06-20 19:34:33
1
Jake Alexander Leedell :
I haven’t had this in a while… but I’ve also been house or bed bound for the last year and a half…. I use to get if after exercise or cooking on a bad day 😩
2026-04-28 20:33:19
1
Mypotsjourney :
Yes and I always get them when teaching. My hand writing is looking more like a doctors note than my actual hand writing 😅
2026-06-23 21:47:17
1
Zara Brown :
Yes. If I am outside in the humidity for too long, I get really shaky.
2026-05-27 16:13:21
1
C.R.Sinclair (Ravyn Sinclair) :
The trick is trying to figure out if they're POTS tremors or my CMT tremors 🤣😭
2026-05-28 11:38:00
1
LilColligirl :
Yes first thought I was going mad
2026-05-09 08:26:19
1
Ashle :
Yes all the time. I’m fighting to get a diagnosis!
2026-04-19 01:16:01
2
sam |🍎🏠🧩♾️| :
Seeking POTS diagnosis and YES. Especiallllyyyyyyy when adrenaline peaks. I’m a SPED teacher so it happens a lot
2026-04-05 00:16:16
5
samantha_roberts_28 :
Yes
2026-04-07 07:08:49
3
Maria Rubia :
daily
2026-04-23 22:42:49
1
Degital foot print 😭😭 :
Yes
2026-05-05 20:05:05
1
User3456789 :
Its adrenaline releasing itself from your body which can sometimes show up as shaking. Did you recently go through a flare?
2026-04-06 19:41:33
2
Vicki777 :
Every time I wake up
2026-04-11 03:49:47
3
Mellissa LaRoche- Mi :
yup, gotta love hyperpots
2026-04-10 15:02:43
2
✝️Chelle✝️ :
All the time!!
2026-04-07 01:48:36
2
Xilxzy :
I mostly get them when I forget to eat
2026-04-05 17:23:25
4
Michelle :
Yup! POTS sucks ☹️
2026-04-08 19:31:18
1
debby :
Yes n your inside feeling like they a quivering
2026-04-05 16:41:04
4
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