@dr.rickpescatore: There’s a daily struggle in America’s #er waiting rooms and it’s time for us to do better. #chronicillness #mcas #fibromyalgia #nurse
I stopped going. id rather be miserable at home than suffer in the ER.
2026-04-07 05:07:34
13
🖤🩶Diane 🤍💜 :
Chronic gastritis that likes to mimic pancreatitis 😭
2026-04-08 17:48:54
8
Bella :
Struggling every single day with CFS and POTS. I feel so incredibly lost and alone at times. Western medicine will NOT heal you.
2026-04-06 13:01:13
21
Dayna Friedrich :
Honestly, the system is broken and the patient (me) usually has to figure it out in their own. Never being able to get correctly diagnosed because no one listens! I know I have hEDS, pots, MCAS and fibromyalgia. Passed out since 8th grade no one was able to figure it out. I did but no one listens! “It’s all in your head” no it’s not!
2026-04-07 17:19:01
13
Kenobi :
Mine was endometriosis amd adenomyosis
2026-04-07 09:33:47
6
sha'myricle :
i am in so much pain everyday and my kids tell me I'm being dramatic I feel isolated. why could I walk without pain for years and now I can't walk more than 5 minutes. and no one cares
2026-04-07 03:29:24
10
Moni ☘️ :
We have seen 101 doctors, medical system is completely broken.
2026-04-06 11:30:01
27
Go away :
Yup- 9 years of this before I had a diagnosis of MCAS and now I have to explain what that is to literal nurses and doctors
2026-04-06 11:37:13
28
lu :
In and out of the ER for years with all those symptoms. Turns out I had Gastroparesis.
2026-05-01 01:26:06
6
ELVI Uri :
Yes , we are millions with no compassion, no knowledge not research is so sad 😞
2026-04-06 13:06:45
12
The Backup Bottle Queen :
That was me…. Months later i was diagnosed with NMOSD. It’s a rare autoimmune disorder that only 22,000 people in the US have. The first neurologist i saw told me it was stress and anxiety and aging 😑
2026-04-08 09:27:51
8
Bok 🐓 :
I spent thousands of dollars to see a specialist after a stroke because my bloodwork showed markers for rheumatoid arthritis. $250 every month for him to tell me it’s just fibromyalgia and to take gabapentin 3x a day and do tai chi. I stopped going to him. My dermatologist said I had psoriasis and should be tested for psoriatic arthritis. What’s the point?
2026-04-06 11:44:38
12
illuminatedhealing.co :
Yess you are so right! I was gaslit for 6 years about my fibromyalgia and I just got the diagnosis this year. I was in the ER so many times over the years and they didn’t help. The autoimmune community thanks you!💖
2026-04-07 04:55:09
7
Mile :
Quiet Core Reset by Talon Greer made me realize I was not broken, I was just living against my natural rhythm. My calm and joy are slowly returning
2026-04-15 20:17:11
47
Leslie / LupusLife💪 / TTS 🛍 :
it's exhausting , I have MCAS, Lupus, endometriosis, AIHA, hEDS , CKD
2026-04-07 11:16:18
6
Mrs.Bumble :
My pain gets worse every day. I live in my living room. Phone and TV. And heating pad. That's all I have. None of this medication helps much. I am way to old to be crying. but here I am. I don't get it. So many years.
2026-04-07 05:34:49
5
Micah Benoit and Flash :
I am old enough to remember having one doctor for everything if you needed a second opinion a internal medicine if it was really confusing your general practice doctor
2026-04-07 03:51:20
5
rtrmct1237 :
If had gone to the ER, they probably would’ve diagnosed me with anxiety instead of the influenza, norovirus and pneumonia that I had.
2026-05-17 02:44:52
2
Annie ❌ :
40 years with pots. Years of Er visits. Finally a doc who gets it. Happy tears.
2026-05-28 02:24:02
3
Koty Ryn :
every doctor I've seen sends me to another doctor who sends me to another doctor. I told them stop writing me off, I don't have anxiety! I'm not dizzy for 4 months straight from anxiety.
2026-05-08 06:09:05
2
rbkah5202 :
Why?
2026-04-30 16:23:26
1
Pamela Funny Girlie :
I was just sent home from ER today. I can barely walk from point a to point b without a walker or cane. A lot going on.
2026-05-14 01:00:35
1
Imyourhuckleberry ❌ :
What are you doing to change that?
2026-05-06 10:12:57
2
Becca Mosurak 🏳️🌈 :
I can’t get heard I AM NOT HEARD NO ONE LISTENS I AM ANGRY
2026-05-07 20:22:09
3
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