Kit ✨♿️
Region: US
Tuesday 07 April 2026 21:35:31 GMT
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percy 🦄 :
haven't had a migraine for 18 days and that's the longest time I've been without a migraine attack since I was diagnosed 🥹🥹
2026-04-08 16:11:18
95
Dakota 🌕🐁 :
actually the suns out and im cured - (suffering, pain and suffering)
2026-04-07 21:45:57
354
Loudlydisabled :
I've been stable with my dysautonomia for years and randomly started passing out again this week. who knows what will happen with this body.
2026-04-07 22:39:07
87
Ademo :
Maybe too personal, but do you use beta blockers? My doctor recommended them (for my POTS), but I’m hesitant.
2026-04-07 22:03:49
12
Courtney :
You showered 4 days in a row?! Congrats!!! It’s so important to talk about this! I can’t remember the last time I did that, probably years. And I can only wash my hair once a week.. or every 2 weeks.. I’ve gone longer 😆
2026-04-08 05:39:20
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CalicoMommy :
it’s hard for me to grasp still having one because everyday is different
2026-05-04 16:57:54
2
📸🍆 :
like I washed my car for two hours today and then ended up in bed for the rest of the day, mind you I have previously detailed my car's for five hours in a day on a hot day (with a snack break) with no problems at all. The worst part is idk if it's leftover exhaustion from my chronic migraines, the medications I am on or something else entirely that I don't even have a diagnosis for😭 I'm just existing through it
2026-05-25 12:36:05
2
mushroomfairy_3 :
I’ve been moving for the past 4 days, I started my period on day 3, and I did not listen to my body so I am definitely in a crashing kinda flare today😅
2026-04-23 21:19:19
2
Emogremlin🖤 :
Struggling with this. I was doing okay for a few weeks and now I’m so flared I’ve missed work everyday this week so far 😓
2026-05-14 13:51:13
2
Lady VanLandingham :
I did some weeding in my garden bed, did the dishes, and laundry yesterday. I'm drained today for sure.
2026-04-07 22:14:28
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Kwertaay<3 :
Thank you for this reminder, my baseline has been getting worse and I feel like I’m going insane.
2026-04-13 08:06:27
3
Bubu ☺️ :
I finally bought a rollator to help me when I flare up rlly didn’t want to but the amount of times I can’t do the things I need to or flat out mess them up and get rlly upset with myself
2026-04-08 00:28:05
34
nattyb.spoonie :
Thank you for this reminder!!
2026-04-14 19:54:22
4
✨️🏳️🌈LEAH🏳️🌈✨️🦘 :
*has a good day* - proceeds to annihilate my entire being by doing ALL the things
2026-05-02 05:53:15
5
DanuFaery :
Sometimes I need my rollator, sometimes I don't.
2026-04-08 17:03:34
3
RatteNBeeCrafts :
I feel this on a spiritual level. I have arthritis, and some days I need a cane to just walk to the kitchen, some days I can run. Very few days where I can run, but every once in a while I can.
2026-04-09 12:58:13
8
JennBob 🇨🇦🧶 :
what's with the timing of these videos.... just felt like I've had a great couple of weeks and then needed to rest this whole afternoon.
2026-04-07 22:11:58
10
miss function :
they need to see it as recovering from an operation only the recovery is forever and all the days are mixed randomly.
2026-04-07 21:49:23
12
Em :
I needed this reminder thank you!
2026-05-11 03:52:16
2
Pink_Poppy :
me when I got used to my baseline pain level and had a breakdown the second I had a flair cause how dare I not be cured
2026-04-08 01:40:40
3
Grace :
I have POTS and I shower daily usually but can only do so because I have a shower chair, other things I do around the house but I push myself too far a lot, currently on my period too it’s hard
2026-04-30 16:53:07
3
Chronically_Carlie :
Man I needed to hear this
2026-05-08 21:14:28
1
notthathealedyet :
I like to say it’s the worst rollercoaster I’ve ever been on that I didn’t ask to be on!! The showering 4 days in a row is such a huge achievement!!!! ❤️❤️❤️
2026-04-09 12:17:16
5
jennifer 🖖🍉 :
but what do I do now that my baseline is getting worse
2026-04-09 00:18:51
2
Christina Ferreira :
Omg the showers!!! I’m so happy for you! I also have EDS trifecta and I dream of the day when a shower doesn’t mean being seriously sick for a week or two.
2026-04-11 17:10:59
2
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