Dr. Grace | hEDS, pelvic floor
Region: US
Friday 10 April 2026 00:53:38 GMT
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Chauntel :
Dysautonomia can cause reactive hypoglycemia, just saying.
2026-04-10 11:06:03
538
Barbie :
At this point in time I have been searching for help for 7 plus years. It is come to the point where multiple people have said to me when I have listed my symptoms. Have you looked into HEDS or pots? I am in constant pain. I literally have to sit there punching myself to get my bones to slip back in and stop the excruciating pain. I have x-rays that show my neck and skull are misaligned. I have had multiple seizures witnessed by people and they still tell me that it’s probably just anxiety.
2026-08-02 09:23:01
0
beep :
my doctor told me there’s no point in being diagnosed with eds because it won’t change anything 💕
2026-04-12 23:48:08
984
Kristen Havlik :
how to build stability when your muscles are rock hard and in pain?
2026-04-10 12:11:38
540
charlotte <3 :
i asked my doctor if my symptoms could be eds and he said, and i quote, “if you live in venice you live in venice”. what do i do with that?
2026-04-10 01:09:30
1736
️Louie 🖤 :
I have all the issues checked off for ehlers danlos including hernias, prolapse, gastro issues l, flexibility, skin elasticity, like allllll of them I brought up EDS and she says "stay off Google" some time passed and I went to another appointment and brought up "connective tissue disorder" and she says "oh yeah it could be that" like, what?! im so tired of doctors not listening to their patients.
2026-04-10 16:43:26
284
Jumbosparkles :
my Dr asked me why I wanted a diagnosis.. I informed her I don't want the diagnosis, and that I want to know why I'm passing out and I don't want to fall down stairs backwards onto concrete again..
2026-04-10 01:28:11
224
kelliRN :
I did better switching to pilates
2026-04-10 01:49:27
45
Complex Cloud :
I remember my family doctor telling me “you know those little packets of salt you get from McDonald’s? Put those in your purse, keep those in your pockets, keep those in your desk drawer, keep those in your locker. Don’t eat McDonald’s.” 😅
2026-04-10 01:43:53
492
asha_mil :
My dr said “it’s hereditary “…. And I said “ ya but what if my parents were never diagnosed?” … and they said “it’s hereditary”
2026-04-13 02:26:30
73
Bea :
Mine said “some people just feel super dizzy when they stand up…” 🤷🏼♀️
2026-04-10 17:41:44
63
christa09018 :
very true! i had a rheumatologist tell me she knew nothing about hEDS, and then tell me it was ridiculous that i wanted to make sure i was finding a physical therapist familiar with hEDS so i wasn’t injured. 😵💫
2026-04-10 04:33:08
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jgoody 🐞🫶🏼🍓🦋💁🏻♀️ :
I have so many symptoms that could be so many things or everything all at once…POTS, hEDS, MCAS. Idk what doctor to go to to even get the right diagnoses.
2026-04-22 01:54:53
15
likeboneslikeskin :
Strength-based yoga has done wonders for my pain. Exercise that focuses on building muscle (slowly, carefully and with someone teaching you proper technique) is very helpful for us to help stabilize our joints correctly.
2026-04-10 12:10:59
94
Alora :
wait wait wait! so what are we supposed to do instead of fiber then!?
2026-04-17 07:42:10
8
✨Mouse Expert Monica ✨ | TA :
Wait chiropractic care is bad for EDS?? I’m still in the process of testing for EDS, so I don’t have a diagnosis yet, but chiropractic care is one of the few things that’s been helping me with my pain and tension headaches lately 😭
2026-05-05 13:38:34
5
user0241299 :
I asked my physical therapist about heds, and she said I’m prob just flexible.
2026-05-06 21:22:29
5
jjjjjjjjjjjjjjjjjjjiiiij :
I’m a hypermobile Olympic weightlifter and spent a year going back and forth with top doctors and it was maddening
2026-05-12 01:11:11
5
lindasilvanic :
Was sent to PT several times. My symptoms worsened every time.
2026-04-17 16:03:28
5
Laurel Fae🌳🧚♀️💗 :
Idk if that fiber is a one size fits all - everything else he said, aligns with me, but fiber actually has helped with my constipation and magnesium that helps with my gut mobility - it doesn’t fully address my bloating though :/
2026-04-24 21:34:54
5
🌈Kim |Soluna Intuitive🇯🇲🧿✨ :
What type of doctor should you go see to get properly diagnosed? I keep seeing physical therapists come up in searches but I’m pretty sure they don’t diagnose..
2026-04-14 21:59:48
5
Zash 🇨🇦 :
My doctor just gives me pain meds. Doesn't even try
2026-04-10 12:26:58
12
𝔍𝔞𝔠𝔨𝔶 🖤🎃 :
When I brought up heds my doctor said "you're not sick enough to have heds" and then proceeded to tell me about her other very sick patients that have eds. Mind you, I have POTS, unexplained urticaria, and a slew of unexplained health problems that we can never find the answers for. She's been ok for most other things, but this was definitely upsetting.
2026-04-10 10:19:35
43
thatonegirl :
how do I increase my stability?
2026-04-12 19:43:00
5
mills n thrills 💕 :
how does one go about getting diagnosed for this? which doctors would you see for this and related MCAS symptoms?
2026-05-19 17:12:51
5
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