I usually get a cart because of my often vertigo but the extra energy to push the cart sometimes isn’t worth it. I hum and sway or shift & sitting doesn’t usually help at all. If able I walk or pace while humming.
2026-04-12 22:01:46
6
Jessica :
My biggest fear is not having somewhere to sit if needed or somewhere to lean on something if I cannot sit. If it’s standing room only, I cannot focus on anything around me other than thinking about sitting. I loathe having this constant reliance to sit to be able to socialize. I will put myself in an uncomfortable situation because I don’t want to be the “wimp” or be seen as the one who needs special treatment.
2026-05-04 04:24:17
6
Karen Mantooth :
walking with hands behind back or fists behind back while sitting.
2026-05-11 20:44:52
6
Magic :
it's true. I get a cart even when I don't need one, sitting normal is always painful so I lean or stand until I need to change what I'm doing because the pain changes
2026-04-12 18:42:23
92
Rebecca Martens :
I can’t stand still in one place for very long. So then I’m shifting my weight, taking little steps, etc. if waiting in line. Looks impatient. Just can’t stand still that long!
2026-04-12 21:22:26
9
Dennise Travels ✈️☕️ :
Scanning the room to see if there is a spot to stand for a work meeting, then being the only one standing
2026-04-14 15:49:30
6
CraftyLittleDickens :
I can't sit in waiting room chairs for more than 5 minutes so I get up and pace. I don't care what anyone thinks about it.
2026-04-12 23:56:09
5
🌿✨Miss🪷Queen✨♍ :
I constantly have to find somewhere to sit and rest. My UC drains me. and the leaning on something is a MUST
2026-04-20 21:59:55
6
TinHeart :
I carry a telescopic stool with me as I often MUST sit. I get very odd looks when I just randomly pull out my stool and sit. I just stare back. I'm am lucky that I do not suffer from social anxiety so I just stare back and say "have you never seen someone sit before?". I know I'm being snarky but at this point I just don't care!
2026-04-13 14:26:09
5
phyllisford7 :
2 & 4 for sure 😬
2026-04-12 20:23:23
5
koala_kay65 :
I never have enough spoons...
2026-04-13 02:15:29
5
slightlyferalgenxx :
EXACTLY THIS!! All of it.
2026-04-12 22:20:32
9
Leah Manuel :
Preach this is why your my fav Tik Toker!
2026-04-12 18:49:15
5
Jack :
100%
2026-04-13 04:54:25
5
Jen.Prada :
Yes! All of this resonates with me. I do all of the 👆
2026-04-13 01:33:25
5
queentargaryen :
my mom is a triple amputee and my dad's cancer is back both have difficulties still with pain management....😔
2026-04-12 20:02:46
6
Aroseslimes :
YES!! Today I have had such a long day over 20,000 steps and I was doing all of these. I was checking out my groceries and I felt like I was laying on the countertop. Everything is hurting.
2026-04-12 18:58:49
5
JayBird :
I order my groceries. But I do love a cart. It hides some of my pain postures.
2026-04-12 21:30:26
6
berniebass :
Oh boy, you are so right.
2026-04-12 18:58:17
5
Lou H :
All of these, anything to help the pain
2026-04-12 18:45:21
52
SmellRanger :
Sometimes my pain spikes and instead of just feeling pain I go into a panic state, have to drop and leave.
2026-04-12 18:38:54
40
tafvskywatcher :
the limping but sometimes its because my legs randomly go numb like they are asleep ... they take turns but sometimes they share
2026-04-12 22:48:48
5
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