lia 🌸🕊🧸
Region: US
Wednesday 15 April 2026 23:29:58 GMT
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Allison :
I recall from your previous video that you had mono, I also had a very very serious case of EBV induced mono. Have they tested you for chronic *active* EBV? EBV can become chronic, but is dormant most of the time, but can flare. However, there is a rare condition where it is chronically active.
2026-04-16 10:29:45
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kylea 🫧🐚 :
i really hope they research this some more :( there should be treatments by now
2026-04-16 00:28:15
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Queenjello :
Does you baseline ever improve if you avoid PEM or do you just remain stable?
2026-04-15 23:44:30
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eternalbluexo :
im afraid i am heading down that route. i got mono 11 years ago, got a wealth of illnesses and im getting worse. i dont want to admit that to anyone tho. not in person. tiktok doesnt count 😂
2026-04-16 05:48:38
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Cheyennecc🖤 :
I remember before you were housebound I was so confused why you were unsure if you could come out to me and now I deeply understand 😭 I miss you but I’m so glad you’re prioritizing yourself now🖤
2026-04-15 23:59:19
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Jersinia Mara :
I want to ask this question with all the love and softness I have. I am disabled, and having to accommodate to that has made me not want to live anymore. But you seem to handle this with so much grace. Where do you find the strength and will to keep going?
2026-04-18 07:11:18
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bigfishbrain :
How can you tell when you’re pushing your body too far if your body is always in pain, how do you find where the line is?
2026-04-16 00:55:34
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Ginawar.ai :
What do you experience like what symptoms prevent you from for example using the bathroom. I know you say feel sick or flare up but in ME is it like.. Body ache? Dizzynesss? Headache? Like i dont know the illness very well and i guess it's different for everyone. But what do you experince?
2026-04-16 03:15:46
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usr20605000 :
Did you get COVID? :/ thank you for sharing your experience but this is so scary and heartbreaking that you and other people have to go through this
2026-04-16 00:05:31
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Ashley :
Do you have a video on your tattoos? Like do tattoos not cause intense pain like washing your hair? Like is the pain different?
2026-04-16 00:31:46
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io.bmo :
i wanna ask something a bit controversial. do you feel like you will get better?
2026-04-16 00:33:55
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ada jaclyn 🪽 :
you are so so strong 💕 people don’t realize how gradual the decline can be and how you don’t even notice it until you’ve pushed way too far to bounce back. i gradually declined to close to severe/mildly severe over the span of a month or two.
2026-04-16 00:03:08
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kylar ⭐🪽 :
do you have tips for making friends as a chronically ill person? i have no irl friends, and im almost always at home. i would love to make friends, but i fear my neurodivergency makes socializing awkward
2026-04-16 01:12:45
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Cassandra Peters :
Are there any foods you can't have anymore bc you're not able to handle them physically?
2026-04-16 21:36:18
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ninfadeloslagos :
Honestly I don’t think you were naive or wrong, not that you should push yourself but sometimes doing something you like even if you know you’ll pay for it is something disabled people have to do! The thing is you didn’t know your disability wouldn’t allow even for that, and that is not your fault
2026-04-19 09:06:19
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⋆˚꩜｡꒰ 𝓐𝓷𝓰𝓮𝓵 ୭ ˚.♡ :
I'm a silent watcher who is also chronically ill, and i just really want to say that you as a person shine so brightly, thank you for making these videos when it's possible for you, i only wish for better days to come your way, you deserve it 🩷
2026-04-18 23:35:44
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🧟♂️Dead Eddie🧟♂️ :
You aren’t a bed pet owner, don’t let yourself think that because you can’t show up for every small thing. As long as someone is caring for them (and I know your caregiver is) then it’s fine not to be able to show up.
2026-04-17 12:46:35
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Lugosi Theatre :
Thank you so much for sharing your story !!
2026-04-16 00:38:20
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Wyllow :
off topic, but, I LOVE your tattoos!
2026-04-15 23:43:08
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🎧Ryan🎵 :
Very similar to me🥲
2026-04-16 00:10:31
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savampire :
I suspect I might have mild/moderate ME/CFS. I cannot afford not to work full time but every ounce of energy I have is spent at my job and then I'm largely bedbound the rest of the time. I have POTS/long COVID/Hashi/suspected HEDS/MCAS and possibly some sort of epileptic neurological thing going on, but doctors can't figure it out. Thank you for sharing your experience. It definitely makes me feel less alone. I can completely relate to feeling like you're failing your family or pets or yourself. It's so surreal having to adapt what you thought your life would be like in your head to accommodate something so difficult. I would love to know more about how you spend your time! Sending you much love.
2026-04-17 21:06:38
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elvarea :
I so badly want to do more and know I am pushing myself more than I should it’s so hard
2026-04-16 00:06:26
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🎀 Tomoyo-chan 🎀 :
Illness is so scary… 🥺🩵🩵🩵
2026-04-16 01:15:18
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Valu | Beauty & Life | UGC :
You are so strong💓 💪
2026-04-15 23:37:51
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muchachasucia :
Thank you for sharing so much of your story/life with us 💜 with your specific diagnoses, will you continue to get sicker over time almost inevitably, or now that you’re resting more and not pushing yourself as much, is there a possibility that your earlier ability to “bounce back” or spend more time out of bed etc. could return in any way? Or, in a perfect world, what could your life with your diagnoses potentially look like past this point? Thank you again for sharing all of this with us, you’ve already educated me so much on your particular chronic illnesses and have really helped me better understand what chronic illness and being bed/homebound can look like for some people.
2026-04-16 00:15:54
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