Dr. Grace | hEDS, pelvic floor
Region: US
Thursday 16 April 2026 01:42:57 GMT
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𝔓𝔯𝔦𝔫𝔠𝔢𝔰𝔰 𝔐𝔞𝔦𝔏𝔢𝔢 :
me sitting here with POTS, EDS, Nutcracker Syndrome, MALS and Pelvic Congestion Syndrome i love it here
2026-04-18 15:02:17
359
Kells_bells85 :
I was diagnosed with May Thurner syndrome and had an emergency aortic surgery in 2015. Finally diagnosed Vascular Elhers Danlos, Pots, and MCAS in 2026
2026-04-16 08:31:07
28
Lilithai 爱 :
I literally can't take any more issues🫠
2026-04-16 05:18:57
1434
Meg✨ :
No thank you, my dance card is full
2026-04-16 19:08:08
590
Silke 🖤 :
Pots and probably HEDs (hypermobile for sure) and these symptoms are how I found out I had endometriosis 🤦♀️🤦♀️🤦♀️
2026-04-17 01:23:26
5
07 :
can i live!?!?
2026-04-16 16:21:39
269
Jessica Tucker :
A “little stent” it’s huge. And the back pain after they put it in caused an endometriosis flare for weeks.
2026-06-02 14:00:58
6
Kat Jannakos :
My POTS started during pregnancy ten years ago, I wonder if this correlates with PVDs.
2026-04-19 19:33:02
5
Amanda 🌻 :
Seeing a vascular specialist this Friday and I’m going to beg to be imaged from the abdomen down because I truly feel in my heart this is the answer to my symptoms. 🤞
2026-04-18 20:33:07
5
KLO.Method ⚡️ :
It’s all linked
2026-04-16 22:15:43
6
StandUpSpeakUp :
I do I do I do! Aweeeee I wonder how to tell my doctor
2026-04-16 15:56:16
5
Jessica Ewell252 :
I had a CT scan with contrast done last month. does that look for these things?
2026-04-27 05:53:22
5
Kaitlin Davis :
I have an upcoming exploratory laparoscopy for suspected Endo and ongoing issues. I have EDS and my POTS seems to be very treatment resistant. Would some of these conditions be noticeable to the surgeon during the surgery?
2026-04-16 19:07:13
6
✰ ݁ ⋆𖥔 ݁𝕰𝖒𝖒𝖆 𝕵𝖔𝖊⋆𖥔 ݁✰ :
the PGAD is soooo annoying!!! from this
2026-04-17 04:49:55
5
Calypso :
How do you get your doctors to look into it? My doctors won't take me seriously.
2026-04-21 20:10:22
5
rainbowcandy50 :
So I was finally diagnosed with May Thurber syndrome with h Eds, POTS, MCAS. But an Indy doctor in Indiana told me H Eds patients often have more complications after the it’s out in to help the compression and recommended I don’t ever fix it?
2026-05-01 16:24:10
5
Teags Park :
But how do you get doctors to freaking order this lol
2026-04-17 19:22:44
6
Janae :
No thank you
2026-04-23 05:16:10
5
Jazmin :
Me thinking this could be what’s going on with me but no doctor wants to check me cuz I’m “too young” to be having health issues. Like spotting due to walking too much isn’t normal… I’m tired
2026-04-30 14:58:51
5
Victoria Gladstone :
This is so helpful for information! Definitely something to keep an eye out for
2026-05-01 21:46:23
5
ryan :
Just had a TV ultrasound and the tech asked if I stood for work. Nope. The report came back as normal but I'm so curious as to what she saw and if it was something related to this.
2026-04-16 22:32:50
6
catsbugsarthealingandmomlife :
I have may-thurner syndrome! I can say my tachy issues have gotten a lot better after my stent but I do have scar tissue in my leg from a prior DVT so it won't ever completely "fix" my symptoms like it could without that. Still deal with pelvis issues.
2026-04-16 23:03:52
6
maddie :
I tried to tell my doc he doesn’t believe me 😭
2026-04-22 20:40:00
5
Twisty :
Right; now find me a doctor who will have heard about this and will provide this care
2026-06-08 04:43:52
9
Bright1ur :
Would it possibly cause worsened symptoms like dizziness when squatting to standing?
2026-04-20 04:07:15
8
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