@lallybutterflyfizzes: Nothing is scarier to a mom than having to hear this sound and monitor this screen. This past week was supposed to just be a follow up for my big girl and to come up with a plan for her upcoming surgery, but it turned into her being rushed to the ER, admitted to the hospital shortly after and surgery a couple of days later. The sad part about all this is that it isn’t over we have a long road ahead of us. She is a warrior and I know she will be okay and everything will be okay 🤍 #noonansyndrome #chdwarrior #momtoawarrior #noonansyndromeawareness #mydaughterismyhero