Jess MyLupusUnfiltered💜🦋
Region: GB
Monday 20 April 2026 19:48:23 GMT
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Parker-Holland❤️ :
Benlysta has helped me tremendously 💜💜
2026-04-23 03:51:19
13
Swetha Choppala :
low grade fever always mostly evening and allergic rhinitis
2026-04-20 20:17:34
16
Lunitari :
I have all of these symptoms, but my labs are all normal, so I won't get into a rheumatologist.... 😭
2026-04-21 03:07:11
32
Ashlee Nicole :
I had low levels, but lots of symptoms went to specialist was seen for 5 mins told to diet and exercise never went back have dealt with it for 2yrs almost cost me my job, my relationship every part of my life if sick of the daily struggle
2026-06-19 03:22:43
1
Hannah Lacey Baird :
Joint pain was my first. Is this benlysta you are using? I’m supposed to start mine tomorrow. So nervous.
2026-04-20 20:34:24
5
icewh0rre :
Just so you know when u hear the second click it’s done
2026-05-19 08:41:53
0
Heather Engram :
I was just diagnosed with lupus. The put me on plaquenil. I still feel awful. What is the shot you are doing and is it helping?
2026-04-21 22:57:54
14
Lizzy Liz 🇲🇽 :
omgz the mouth ulcers😫😵💫
2026-04-29 07:36:11
5
J.Lynn 🩵♣️ :
Same girly- so I recently listen to my husband finally and cut processed sugar - I promise for me at least sugar it making us worse by thousands. I ate a breakfast bar yesterday at work and I am sore sore and swollen today. No stoping sugar isn’t gonna cure you but I promise it should reduce by a lot!!! If you end up doing it let me know how it goes
2026-04-21 10:12:27
4
auntkim1 :
I’m on Benlysta starting my 3rd week!! I do feel a different. I am not in such dramatic pain. It’s still there, praying this medication works for the point where I could have no pain I started out thinking I have the flu, but then they did bloodwork and figured out it was terrible body pain. It just affects me mentally and physically. I wish all of you well God bless let’s keep the faith they’ll be.🙏
2026-04-20 23:58:43
8
VeronicaYañez :
After battling anemia my whole life, having a hysterectomy last October, my PCP believes I have Lupus SLE. Waiting to see rheumatologist on May 11th. Not sure how to deal with headaches until then.
2026-04-20 21:30:18
6
🦋Jessie0922🦋 :
What are you injecting
2026-06-10 04:03:45
1
🐯Edelyn🇵🇭 :
Hope you’re feeling ok today hun.
2026-06-09 01:58:18
1
vi gurl :
I never had to do shots
2026-04-25 04:44:47
3
valokaskas :
I have had lupus 8 years. I have only Oksiklorin...it doesnt't help at all 😞. So much pain and stiffnes every day.
2026-04-24 11:14:08
3
Andrea Smith💙 :
my rheumatologist believes I have lupus but the freaking tests are expensive so I haven't done them yet.
2026-04-29 13:07:51
2
maria17larara :
Por favor en Español
2026-06-10 08:19:52
1
virigutierrez1727 :
Those injections are so painful.
2026-04-21 04:11:44
2
__alexis__denise :
have you experienced any flare ups while on the benlysta ? I just had a flare up may30-june1st . I been on the benlysta since Dec 2nd
2026-06-18 01:41:18
1
Oapes :
all of them 😭
2026-05-04 05:59:32
1
Nicole :
my daughter takes monthly infusions and it sens to be working
2026-06-02 03:29:17
1
Lil T 🤟🏼 :
What do yall get in your infusions tht help you the most. Between lupus and pots. I’m over it … :( and idk what else to do anymore
2026-05-31 06:38:36
0
Meredith_802 📚❌🇺🇸🤘💀 :
I was on benlysta for awhile and loved it. But I picked up every cold and flu known to man kind. And I work from home. Someone could sneeze in the next county and I’d get sick. I had to stop taking it.
2026-05-03 22:17:51
3
YoOgen :
its permanently recovery?? or not
2026-04-28 03:56:37
1
Sammy :
I’ve had symptoms since 2022,my bloods came back negative when I was tested 2 years ago. What can I do next?
2026-06-12 11:57:03
1
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