@blooddocdad: Erythromelalgia is seen in polycythemia Vera and primary thrombocytosis #blood

Dr. Amit Garg 🩸
Dr. Amit Garg 🩸
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Region: US
Monday 20 April 2026 21:09:07 GMT
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michelleherrera057
Michelle26 :
I've had my disorder for 3 years and didn't have these symptoms until I moved to a warmer climate, this year. I also wonder if elevation levels don't have an effect?
2026-07-13 05:42:21
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chefagi_pots
ChefAgi_Pots 🇨🇦 :
I have raynauds and erythromelalgia i think. its really bad. ive had both as far as I can remember but last summer the erythromelalgia just went crazy in the ontario summer. I was peeling from the constant swelling. ugh
2026-05-11 05:11:57
1
tiffystots
TiffysTots :
I have this, normal CBC, ANA, every single blood test. But I did have a skin punch biopsy which was positive for small fiber neuropathy
2026-05-19 06:17:36
1
jamielynn_1129
JamieLynn1129 :
how can you tell the difference between this, and raynauds? my son's hands/feet frequently have a reddish-purple hue, & it gets worse during pe, or in the cold..
2026-04-20 22:35:30
12
marlena_923
Marsbar_23 :
I was diagnosed about 2 years ago, but most doctors I've seen don't know about it. 😒
2026-04-21 05:20:28
4
anomienous
maladymaker :
I have a recent CBC, what am I looking for?
2026-04-20 23:19:34
5
miss.princess.peach
🫧 Princess Peach 🫧 :
Can you have that but also reynauds too ?
2026-05-07 10:51:05
1
lorenamaga2
Lorena Maga :
I have high RBC and HTC. And my hemoglobin is also high. Should I get tested if so what kind of tests
2026-04-21 07:48:32
4
sissy.bev
Bev🌻 :
My daughter has had this for 6 years. terrible life changing horrific disorder
2026-05-04 14:59:50
2
color.with.gracie
color.with.gracie :
What about if you get the burning and redness in your face as well? Almost feels like sunburn, comes on similar to how flushing would
2026-05-17 02:55:35
1
...jenn_a
...jenn_a :
My niece was diagnosed with this. After years of pain, she was able to get a lidocaine infusion paired with medication and she’s finally got some relief.
2026-04-30 18:49:32
2
shanonarm
Shanon2 :
I have horrible leg pain and heaviness with the burning feeling. Had R-CHOP for DLBCL 3 years ago. Any treatment for pain?
2026-04-26 20:38:59
3
shahida28beukes
hida362526 :
I have been struggling with burning feet when i stand up in the morning
2026-04-22 18:00:49
1
dizzybrawd
dizzybrawd :
What can they do about it?
2026-04-21 21:08:22
2
awaytome
AwayToMe :
What are your thoughts on the current trials for BTK inhibitors and MPNs? (Anecdotal but I was put on Remibrutinib for different indication and it has also now resolved my polycythemia)
2026-05-03 18:48:01
1
kennyann5
Kendall Ann :
I HATE IT!!
2026-04-21 06:10:13
4
lorenamaga2
Lorena Maga :
Ok thank you. Should I be worried
2026-04-21 15:01:34
2
jasmin5480
Jasmin :
I love learning, thank you Doc 🥰
2026-04-27 09:12:02
1
lorenamaga2
Lorena Maga :
Ok thank you
2026-04-21 14:57:23
1
marinaloferreira
Marina Louro Ferreir :
I was diagnosed with this last year but no follow up treatment nor advice was provided. Should I be applying any cream to my feet or doing something in specific to manage this condition?
2026-04-29 23:57:33
1
lucyreds7
LucyReds :
I have this and I was told is Rheumatoid arthritis
2026-04-20 23:28:05
1
chrissieevansschmitt
Chrissie Schmitt :
I also have this, but I also have rheumatoid arthritis years ago. I had a bleeding time for a surgery that I was about about to get and they said that I failed that test that my blood doesn’t plot like it should and that I should take medication to clot the blood prior to surgery???? I was never really given a diagnosis, though any clues
2026-04-21 03:07:32
1
shena_1_
Shena :
What blood disorders might accompany this condition? I had unprovoked multiple pulmonary embolism’s a couple years ago…Never was treated or told to be seen by a hematologist. Ty in advance!
2026-05-12 19:09:50
0
rachels.radical.road
Rachel's Radical Road :
I didn't know a CBC could show it 😱. I just had one of those taken and have been talking to my doctors about the Erythromilalgia I have. But they didn't mention the CBC could show it. Anyone know what to look for on that blood test?
2026-06-21 13:21:01
0
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