Mariana
Region: US
Tuesday 21 April 2026 11:53:33 GMT
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greenapples112 :
I never even thought of life insurance. What a practical thing to say, but unsettling. I wish you all the best.
2026-04-21 22:20:39
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Dacockrell07 :
Why did they ask if you want life insurance? Because afterward you’d not be eligible right? 🥺
2026-04-23 01:33:20
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Rachel Salstrom :
I feel all of that! We finally found out that my dad had Huntington when I was 20 and I got tested at 21 or 22 and I’m positive. I had my tubes tied because I just couldn’t stand to pass it on. If and when you’re ready to have kiddos, Allie LaForce and Joe Smith have a Huntington’s foundation and you can apply for a grant to do IVF and they’ll test the embryo. I have a five-year-old now and I know for a fact, he does not have Huntington‘s. 🥰🥰🥰🥰🥰🥰🥰🥰
2026-04-21 19:52:50
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ᛣ dolly ᛉ :
not being able to get tested as a minor is crazy to me
2026-04-22 08:21:33
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Poop Jonesy :
I’m sorry. huntingtons has decimated my family. I do hope that there’s a big advancement in treatment as you age.
2026-04-21 19:39:42
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Haleigh :
I also was tested and diagnosed at 18! I take care of my mother, she’s in end stage HD. It’s almost like looking into a little crystal ball sometimes. You’re in my thoughts.
2026-04-22 03:36:41
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Michele & Kyisha :
My daughter is in the late stages of Hd she’s 34 she started showing signs at 21 .
2026-04-22 02:01:04
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S.Fro :
One of my residents has been living with the symptoms of it for over 10 years now. shes still walking, talking and has her memory, just slurred speech. shes in her 60s. Hoping you still have a great quality of life for that long, too!
2026-04-22 03:37:13
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Lvp :
I did the same thing but with hereditary ALS. Also tested positive. It’s a strange experience to live knowing one day you will likely show symptoms. For me it’s 90% chance
2026-04-22 04:08:31
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Dr. Glaucomflecken :
Thank you for sharing this part of your life. You’re an incredible advocate. ❤️
2026-04-22 21:12:31
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courtneyhusbands8 :
Huntingtons runs on my mom’s side. My grandmother passed from it but My mom refused to get tested so I chose to get tested. Luckily I only had 17 repeats so was negative but my cousins and aunt have it and I struggled with the guilt of being negative while they ended up positive.
2026-04-23 03:38:47
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aimee_in_ga :
My literal next scroll was and actual new report on the first successful treatment for HD
2026-10-04 10:36:08
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Brynn :
You are so brave. Uniquely brave. God bless.
2026-04-22 00:58:59
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Siouxie Sioux :
You are smart and strong. Knowledge is power. You are powerful.
2026-04-22 01:48:05
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Andrea :
i agree with knowledge being power
2026-04-21 12:37:48
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ansley :
I also have a scary gene. It is so strange walking around with knowledge of your own morbidity that most people don’t!
2026-04-22 20:21:53
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Laurie Barron 🇨🇦 :
Biggest hug ever ❤️
2026-04-22 00:02:04
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Desiree Richards :
My fiancé has it CAG 42 we have been together since we were 16 we weren’t going to have kids because of this especially because everyone in his family but one cousin all have it, I got pregnant we decided to make the decision to get Amniocentesis to see what we were going to do she didn’t have it but my heart breaks everyday for my partner, he seems to handle it better then I do, I pray pray and pray someday they come up with something!
2026-05-21 02:33:42
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Itsjessicaxo :
Omg 50/50 is such a large risk. I never knew about this disease
2026-05-04 04:56:05
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Angie68395 :
There have been major breakthroughs in the treatment of Huntingtons disease and slowing the progression in the last year! #thereishope
2026-04-22 02:19:13
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tis_i_becca :
my best friends mom passed when she was 10 from Huntingtons. she decided she didnt want to find out. she could handle it being a possibility that loomed but didnt want to confirm. her sister recently got tested because she was starting to show symptoms. she was positive. this is such a heavy diagnosis for anyone. im glad you have support and followed through with testing when it felt right for you. I hope nothing but a life full of love and no regrets.
2026-04-21 23:32:49
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Sharon Dunn :
You are a brave girl to teach the world about HD. My brother tested positive, my sister and I tested negative. My nephew has HD and he has a son. For 75 years this has been my life.
2026-04-21 14:07:32
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amott :
You’re so brave. I wish you the best.
2026-04-22 01:19:06
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john piermatti :
Is there nothing they can do? Now you know you have it? There’s no treatment at all? ::((
2026-04-21 16:03:08
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0410100313 :
HD positive test 3 years ago. Even watching this is hard for me. It’s so hard to wrap your mind around. Lost my dad to HD this past Thanksgiving
2026-04-22 01:22:59
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