Ben Chase
Region: US
Thursday 23 April 2026 23:14:33 GMT
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Marla 🇨🇦 :
Rare diseases suck! I have moon face from prednisone, it’s definitely not fun! 🙏
2026-04-23 23:19:46
7
sassyJ :
Ive seen so many ppl with this, I have angioedema from bp meds . I don't think its as rare as they say
2026-05-15 05:08:33
13
lindsaylister1 :
I’m 54 and had this since the age of10 ..mum and sister both have it too, I’m lucky I’m in the Uk 🇬🇧 and on a new drug ,not had any episodes in 3 years
2026-05-11 19:53:44
2
💜Mz_Tiffany💜 :
im Sorri Benny Boy Feel Better Much Luv Darlin
2026-04-25 05:20:55
1
user8099198806472 :
do you know what your condition is called? my dad has random swelling and it starts with a tingle sensation he gets it in random spots. he has been suffering this since he was 18 and we have received no answers from doctors
2026-06-07 08:00:05
4
D.Dimitrov :
I feel you bro 😂 Please if somebody know what can help against angioedema?
2026-06-15 02:45:05
9
Steph :
My husband was just diagnosed with HAE. He is prescribed a preventative oral med, and a rescue shot. Are you taking preventative meds?
2026-06-24 00:43:20
0
Emily McDearmid :
I feel ya. Not the same issue but angioedema is the worst
2026-04-24 22:30:03
1
H A I L 🍒 :
Roughly how many times a year would this happen? And how long does it last whe you flair up?
2026-04-24 21:17:01
0
Tasha💕 :
looks painful 😒 is there something you can take ? 🙏 thanks for sharing for awareness!!! more knowledge more power ❤️
2026-04-25 00:57:07
0
Georb :
Idk what type you have omg but do you have rescue meds or find that you need them? I have HAE with normal c1-INH (type 3)
2026-04-23 23:43:44
1
lindsaylister1 :
Please please 🙏 anyone on here with HAE that needs to chat and or support please contact me, I have had this truly awful disease for many years but there are new drugs out there…. I have been symptom free for almost 4 years
2026-06-16 17:43:03
0
HustleRose :
do you have icatibant?
2026-05-14 00:36:26
0
Kristen St. Pierre :
🗿
2026-04-30 14:07:33
0
Sunlover64 :
😁😁😁
2026-04-26 18:32:41
0
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