@mariana4hd: This is a draft from a couple months ago. I didn't tell my mom I got tested for a really long time, and then she accidentally found out a year after I got my results and it broke my heart because I was trying to avoid making her feel guilty about it. #huntingtonsdisease #raredisease #hdawareness #speech #mom

Mariana
Mariana
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Region: US
Monday 27 April 2026 17:10:00 GMT
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kaylagbloom96
𝚔𝚊𝚢𝚕𝚊 𝚋𝚕𝚘𝚘𝚖 ☻ :
We recently discovered Huntingtons runs in my husbands family. My husbands grandmother and father both have it. He is terrified to get tested
2026-05-04 00:08:45
388
jperti
jperti :
Hey sweet girl. Congrats on nursing school! How’s that going?! Thanks for sharing this moment with us, you’re a great daughter, and I hope you have the most amazing day!
2026-04-27 19:38:20
361
rhinestonecowgirl2
rhinestonecowgirl2 :
I can’t even imagine how it must feel for your mother trapped in her own body and mind. I can’t imagine the frustration she must feel and so strong you both are. You’re going to be an incredible nurse💜
2026-05-03 02:18:38
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lizzaay90
Lizzay90 :
Maybe she thinks if she knew sooner she could have done something or more to prevent it from progressing as fast. So she is determined in her mind to tell you that you have HD so maybe you will have a chance. I’m sorry 😞 I can only imagine how hard it is. You are amazing!
2026-05-04 03:58:53
1312
lizabellner
lizabellner :
heyyy i’m just wondering do you usually understand what she’s trying to say or is it guessing most of the time? sending all the love to you two 💕
2026-04-27 17:17:03
245
lilpikaduck
LilPikaDuck :
I'll always respect my grandad for choosing to adopt. It was before genetic testing and all he knew was his dad had it and he didn't want his kid to have it
2026-05-04 01:23:36
321
203_101
Zoey :
I feel like she probably worries about you and that's what she thinks about. She knows your future and as a mom I know thats probably a big thing for her.
2026-05-05 07:30:35
182
leolove81381
Mand’81 :
She probably feels so much guilt passing this on to you.. I’m so so sorry.
2026-05-22 05:14:22
101
cheyannevacher
It’s Cheyanne 💕 :
Huntingtons is devastated and not talked about enough! She is clearly so proud of you 💕💕💕
2026-04-27 19:46:21
133
lindsnc3
lindsey. :
So proud of you Mariana, I know your mom is proud of you too!! 💕
2026-05-02 21:28:18
67
chip80581
chip :
You’re going to make a wonderful nurse honey. You are living healthcare and anyone would be blessed to have you. Thank you for sharing with the world.
2026-05-07 01:25:41
15
lovehkvluvp
Maria :
Shes genuinely trying to communicate with you 🥺 it's like she's in there but trapped in her own body 😔
2026-06-11 17:54:42
6
mavisfashion4u
MavisFashion4U :
This is so sad 😭the life she has been robbed of because of H disease. Robbed her from being the mum she was and enjoying seeing her kids prospering 😭
2026-05-05 12:34:23
11
_nxv25
_nxv25 :
You are such a wonderful daughter to your beautiful mum❤️
2026-05-04 03:05:48
8
thatgirlll97
HALEY✨ :
Praying for you, and your mom.
2026-05-03 12:38:15
12
bunnykitty033
BunnyKitty🐰 :
This is heartbreaking will you be tested and siblings?
2026-05-04 07:03:09
10
ange56530
Angelina Morgan :
My heart breaks, in her head she knows what to say but she can't get it out x
2026-06-11 20:44:38
9
arielle_usatinnn
arielle_usatinnn :
Sending so much love
2026-05-04 08:11:02
15
anialodziuk
Ania Lodziuk :
the way your face lit up when she acknowledged you🥹😭
2026-05-04 12:26:20
10
gashtank
gashtank :
Lost my dad to HD 2 years ago. The most devastating disease 😭
2026-04-30 18:57:09
11
gennerz11
Genevieve :
My grandma just passed of huntingtons. She was challenged with it from age 60-84. She still had these infrequent, amazing moments of lucidity until the end. You are an inspiration❤️so much love❤️
2026-05-03 10:26:03
9
rncourt
Courtney James :
Your so strong so sorry you have to watch your mum going through this. A lady in my nursing school had so many movements we really struggled to make sense of it we just thought they were just ticks we later found out she had been diagnosed with Huntingtons it’s so sad that there isn’t enough education on this disease.
2026-04-28 02:59:26
10
chest_la_vie
chest_la_vie :
I need to get my testing done. I lost my mamaw two years ago yesterday, give your momma a hug for me 🖤
2026-04-27 20:21:52
6
marissa.hagen5
Marissa Hagen :
Having a symptomatic parent is the worst feeling. You are so strong!
2026-04-27 21:36:22
5
livinlabuenavista
Alek :
She’s so strong and so are you🙏❤️
2026-05-05 22:11:57
3
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