@madison_mitchell02: If you would have told me last July that we would be taking Violet on a carribean cruise. I would’ve told you that you’re insane. Like seriously. Insane. Violet used to be so sensitive to light that we couldn’t even have the ceiling lights on in our home. Let alone try to go outside with her. We were looking at multiple surgeries, a cornea transplant, and told that we would be lucky if Violet had enough vision to see lights. To be where we are today (just 9 months later) is the biggest answered prayer. Her glaucoma has been under control since her first and ONLY surgery and her vision is the best it can be without having irises. Her doctors have told us that it’s not often they get to be surprised in this way with their patient’s. We are forever grateful to be raising a living miracle and will never stop sharing her story. 💜 #Violet #aniridia #congenitalglaucoma #familyvacation #babysfirstvacation
From one Aniridia mom to another, you are doing a great job 🥰 she’s a lucky girl!
2026-04-28 20:11:29
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Sean P :
Our daughter has Aniridia too. She’s 6 months old. 🩷
2026-05-04 04:53:38
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C.Tsu :
Beautiful! Just so you know Sun and UV rays reflect off water and sand and bounce back under the umbrella, so some sunglasses may help. Worst sunburn of my life I spent entirely under an umbrella
2026-04-28 21:44:13
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Stephanie Lynn :
My aniridia boy refused to wear his sunglasses, and even his prescription glasses when he was young. He’s 5 now and happily wears his eye wear, uses his mobility cane, and had his first t-ball practice today ❤️
2026-04-29 02:51:47
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VegetarianThespian :
I’m sure you’ve already tried them- but there are “baby sun goggles” basically pool goggles but with eye protection built in! Babies can’t pull them off as easy and they don’t fall off in the water!
2026-04-29 07:41:03
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saundralikesdogs :
Do her pupils still constrict in light? This is such an interesting condition, thanks for sharing about your girl!
2026-04-29 03:30:09
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JoJo :
you know, thinking about how sensitive she must be to light and loving the umbrella trick, now im thinking 🤔 this little one is probably going to have FLAWLESS skin and she'll probably have the coolest sunglass collection, plus having caring, supportive parents? shes on her way to being unstoppable. world better watch out
2026-05-01 01:05:20
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AZ214 :
Do they make little baby sun goggles?
2026-04-29 00:34:07
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Heather Elders :
Girl! Get her a swim zip!
2026-04-29 15:17:54
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Aaron :
Just a tip for when she's older: I have irises, but they don't constrict properly, so I face a lot of the same challenges that folks with aniridia do. If she keeps hating glasses and goggles, they now make therapeutic tinted contact lenses that have been a game changer for me. They not only block UV, they also use a darkening tint to act essentially like sunglasses for the whole field of vision. That means no brilliant blinding flashes in your peripherals, no heavy glasses weighing on your nose and ears, and nothing to keep up with or avoid breaking as you go through your day. Probably not the best option until she's 8 - 10 or so, but man I would have just about killed for these as a kid, and I don't go anywhere without them now.
2026-05-02 09:45:44
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Hockeygirl1995🇺🇸 :
I’m sorry I just wanna ask. You don’t have to answer if you don’t want to. I’m just genuinely curious about the condition. I’ve never heard of it so she doesn’t have iris’s. Does that mean she doesn’t have an eye color she just has pupils? I’m always looking to learn more and I’ve never heard of this condition before and I think you’re doing an amazing job of giving her the best life she can have.🥰🥰🥰🥰
2026-04-29 14:59:29
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Potato soup :
I had to read this twice. I have a daughter named Violet and another named Iris
2026-04-29 16:58:40
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CJ :
When I was a kid I had to wear sunglasses (with a behind the head strap) in the ocean because I kept getting sunburns on the whites of my eyes from the sun reflecting off the ocean! We don’t realize how much the sun bounces back at us from water. Umbrella was a smart move!!
2026-04-29 23:39:16
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christinastanley62 :
This is why social media is good in ways because a lot of us have little knowledge on sweet babies like violet!
2026-04-30 23:32:08
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Skye :
Oh I know her sunglasses collection is going to be fabulous
2026-05-12 23:48:51
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Its just Haley :
Ultra violet is her hero name
2026-04-29 11:45:22
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Taylor Keef ( IVF•FTM•SAHM ) :
My baby’s name is Iris 💕 they would be besties!
2026-04-29 04:33:41
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deannahemi :
My aniridia girl never wore her sunglasses! Her favorite thing is shining a flash light right in her eyes!
2026-04-29 01:09:28
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formeroliviabenson :
Not the same situation, but my daughter was born with bilateral cataracts. We are at high risk for her developing glaucoma in the future. Every moment they can be happy is precious. Sending good vibes to you and yours 💜
2026-04-29 09:20:50
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Sciencemama123 :
There's a baby carrier made for water. Helps you play in the ocean hands free so you can hold the umbrella and still splash without her slipping
2026-04-29 04:07:09
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Rachel :
My little boy has congenital glaucoma & I never see it talked about on social media. It definitely gets a little easier as they get older 🤍 sunglasses & hats are our life savers
2026-04-29 05:07:12
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chloeanne :
when i was 6months i had glasses that strapped to me like goggles, maybe try keeping her hands active with toys when you put her sunnies on? sometimes just getting acclimated to wearing them can be weird so adding in some interests might help her sensory issues with the glasses🤔
2026-04-29 14:53:51
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chiefandsarge :
From one Aniridia mom to another-never miss an opportunity to make wonderful memories 💕 It’s just a few extra accessories for a princess.
2026-04-29 13:29:50
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Jenna Conner :
My father in law, husband, and step son have it I can't believe I fell onto this side of tiktok😭
2026-05-25 23:06:19
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Life w Jess :
Is she able to use a little inflatable with a sun shade? My son has one and it’s great to keep the sun directly off of him!
2026-05-03 18:49:28
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