@madison_mitchell02: If you would have told me last July that we would be taking Violet on a carribean cruise. I would’ve told you that you’re insane. Like seriously. Insane. Violet used to be so sensitive to light that we couldn’t even have the ceiling lights on in our home. Let alone try to go outside with her. We were looking at multiple surgeries, a cornea transplant, and told that we would be lucky if Violet had enough vision to see lights. To be where we are today (just 9 months later) is the biggest answered prayer. Her glaucoma has been under control since her first and ONLY surgery and her vision is the best it can be without having irises. Her doctors have told us that it’s not often they get to be surprised in this way with their patient’s. We are forever grateful to be raising a living miracle and will never stop sharing her story. 💜 #Violet #aniridia #congenitalglaucoma #familyvacation #babysfirstvacation

Madison|Violet’s Mom 🪻💜
Madison|Violet’s Mom 🪻💜
Open In TikTok:
Region: US
Tuesday 28 April 2026 19:34:40 GMT
1969133
115763
157
892

Music

Download

Comments

brittanyspring928
-insertusernamehere- :
From one Aniridia mom to another, you are doing a great job 🥰 she’s a lucky girl!
2026-04-28 20:11:29
2362
seanpatrickhance
Sean P :
Our daughter has Aniridia too. She’s 6 months old. 🩷
2026-05-04 04:53:38
298
lumpylemur
C.Tsu :
Beautiful! Just so you know Sun and UV rays reflect off water and sand and bounce back under the umbrella, so some sunglasses may help. Worst sunburn of my life I spent entirely under an umbrella
2026-04-28 21:44:13
10755
stephnortman
Stephanie Lynn :
My aniridia boy refused to wear his sunglasses, and even his prescription glasses when he was young. He’s 5 now and happily wears his eye wear, uses his mobility cane, and had his first t-ball practice today ❤️
2026-04-29 02:51:47
3790
laura.ashley.s
VegetarianThespian :
I’m sure you’ve already tried them- but there are “baby sun goggles” basically pool goggles but with eye protection built in! Babies can’t pull them off as easy and they don’t fall off in the water!
2026-04-29 07:41:03
814
saundralikesdogs
saundralikesdogs :
Do her pupils still constrict in light? This is such an interesting condition, thanks for sharing about your girl!
2026-04-29 03:30:09
279
jojob13
JoJo :
you know, thinking about how sensitive she must be to light and loving the umbrella trick, now im thinking 🤔 this little one is probably going to have FLAWLESS skin and she'll probably have the coolest sunglass collection, plus having caring, supportive parents? shes on her way to being unstoppable. world better watch out
2026-05-01 01:05:20
227
tiffaz124
AZ214 :
Do they make little baby sun goggles?
2026-04-29 00:34:07
109
heatherleeelders
Heather Elders :
Girl! Get her a swim zip!
2026-04-29 15:17:54
77
flapdoodle21
Aaron :
Just a tip for when she's older: I have irises, but they don't constrict properly, so I face a lot of the same challenges that folks with aniridia do. If she keeps hating glasses and goggles, they now make therapeutic tinted contact lenses that have been a game changer for me. They not only block UV, they also use a darkening tint to act essentially like sunglasses for the whole field of vision. That means no brilliant blinding flashes in your peripherals, no heavy glasses weighing on your nose and ears, and nothing to keep up with or avoid breaking as you go through your day. Probably not the best option until she's 8 - 10 or so, but man I would have just about killed for these as a kid, and I don't go anywhere without them now.
2026-05-02 09:45:44
154
hockeygirl1995
Hockeygirl1995🇺🇸 :
I’m sorry I just wanna ask. You don’t have to answer if you don’t want to. I’m just genuinely curious about the condition. I’ve never heard of it so she doesn’t have iris’s. Does that mean she doesn’t have an eye color she just has pupils? I’m always looking to learn more and I’ve never heard of this condition before and I think you’re doing an amazing job of giving her the best life she can have.🥰🥰🥰🥰
2026-04-29 14:59:29
14
katiepayne_7
Potato soup :
I had to read this twice. I have a daughter named Violet and another named Iris
2026-04-29 16:58:40
10
bamboocalifornia
CJ :
When I was a kid I had to wear sunglasses (with a behind the head strap) in the ocean because I kept getting sunburns on the whites of my eyes from the sun reflecting off the ocean! We don’t realize how much the sun bounces back at us from water. Umbrella was a smart move!!
2026-04-29 23:39:16
10
christinastanley62
christinastanley62 :
This is why social media is good in ways because a lot of us have little knowledge on sweet babies like violet!
2026-04-30 23:32:08
25
skyedeanna
Skye :
Oh I know her sunglasses collection is going to be fabulous
2026-05-12 23:48:51
5
its.justhaley
Its just Haley :
Ultra violet is her hero name
2026-04-29 11:45:22
8
taylornancekeef
Taylor Keef ( IVF•FTM•SAHM ) :
My baby’s name is Iris 💕 they would be besties!
2026-04-29 04:33:41
0
deannahemi
deannahemi :
My aniridia girl never wore her sunglasses! Her favorite thing is shining a flash light right in her eyes!
2026-04-29 01:09:28
22
formeroliviabenson
formeroliviabenson :
Not the same situation, but my daughter was born with bilateral cataracts. We are at high risk for her developing glaucoma in the future. Every moment they can be happy is precious. Sending good vibes to you and yours 💜
2026-04-29 09:20:50
12
sciencemama123
Sciencemama123 :
There's a baby carrier made for water. Helps you play in the ocean hands free so you can hold the umbrella and still splash without her slipping
2026-04-29 04:07:09
9
roaming.rach
Rachel :
My little boy has congenital glaucoma & I never see it talked about on social media. It definitely gets a little easier as they get older 🤍 sunglasses & hats are our life savers
2026-04-29 05:07:12
8
chloeannemk
chloeanne :
when i was 6months i had glasses that strapped to me like goggles, maybe try keeping her hands active with toys when you put her sunnies on? sometimes just getting acclimated to wearing them can be weird so adding in some interests might help her sensory issues with the glasses🤔
2026-04-29 14:53:51
5
chiefandsarge
chiefandsarge :
From one Aniridia mom to another-never miss an opportunity to make wonderful memories 💕 It’s just a few extra accessories for a princess.
2026-04-29 13:29:50
25
jennaconner3
Jenna Conner :
My father in law, husband, and step son have it I can't believe I fell onto this side of tiktok😭
2026-05-25 23:06:19
3
disneylifewithjess
Life w Jess :
Is she able to use a little inflatable with a sun shade? My son has one and it’s great to keep the sun directly off of him!
2026-05-03 18:49:28
3
To see more videos from user @madison_mitchell02, please go to the Tikwm homepage.

Other Videos


About