Morganismymiddlename
Region: US
Wednesday 29 April 2026 23:26:15 GMT
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Ashley :
It’s soooo easy for other people to suggest expensive moves and everything because it’s usually just hypothetical and they have no idea at all what day to day life is like. When would you even be able to pack? She requires 24 hour supervision and doesn’t sleep. People are just clueless and think they know. The only suggestion I have is making sure she doesn’t have a UTI, we had that issue once and it was awful but it’s always a possibility when they’re still in diapers. I would love it if you could talk more about managing her menstrual cycle and bc (if that’s something you’re comfortable with!) because my level 3 8year old is barreling towards puberty and I’m terrified.
2026-04-30 00:47:58
128
BrickAndBloom1909 :
How dare you not also be a magician!!
2026-05-01 14:53:31
136
Cathy Milford :
Just writing a comment to give you sind support. Sounds like it's a really tough experience for you all 💔
2026-06-04 22:24:29
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@kittynspurs :
I'm so sorry 😞 It sounds like you're just getting the run around and no real solutions. Do you ever get breaks?
2026-05-13 03:16:47
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Ain’t Tew Proud Tew Beg :
Do you get respite??
2026-05-02 10:26:25
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KcClaire :
Can I ask if you would consider enrolling her in speech, pt, ot, or ABA at a place or home based program that accepts patients 25/26 and older? It would give you guys a break most. It might build skills too but she’s probably worked on that while in school, so mostly just to give you guys a break.
2026-04-30 03:08:56
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MurAnnDuh :
If you are near Madison, WI. If your daughter is over 18 years old, Options In Community Living could provide residential services.
2026-05-31 02:19:24
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Purple Rose :
Melatonin?
2026-04-29 23:52:29
0
Lana :
I haven’t looked through all your videos so i apologize if you’ve addressed this, but have you tried NAC? Some decent studies that show help with self injurious behaviors in some patients. Wishing you and your family all the support you need ❤️
2026-05-06 02:38:48
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Graysen Gracey :
You’re doing the best you can. Your best is all you can give. All love to you mama.
2026-05-02 18:25:44
6
Tracy Finnley :
people shouldn't judge your daughter on presenting behaviour....there's always a reason why they're behaving in such ways...it's finding out why & it can take forever & a day...but you're one strong woman and mother...prayers & love to you all xxxxx
2026-06-04 21:57:52
1
shawna_111 :
Have you tried Magnesium Glycinate? I know melatonin makes her worse you said so I don’t know if it would have the same effect but it’s better at regulating anxiety and helping with chronic sleep issues!?
2026-04-30 06:14:43
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Jigga Snook :
I just want to send you all my love and support 🙏✝️💜
2026-05-12 16:18:53
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Jess Ajkshdb :
I agree. I wouldn’t do it if it would be illegal. That could
2026-04-30 12:04:47
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Celeste🦇J🦇 :
You are a great mom. I literally don’t care what anyone else says. You are doing EVERYTHING possible for that baby.
2026-05-06 05:00:54
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Nick :
Thank you so much for this video. I truly hope that this clears up so many of the comments you’ve been getting because it’s now been addressed in a pinned video so it’s easily accessible to find.
2026-04-30 16:23:56
5
Unknown :
Your response is absolutely chef’s kiss. And you have a a lot more self-control than I do. You’re doing amazing.♥️
2026-04-30 05:42:30
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Chloe♒️ :
When did Cameron first start showing signs of this behavior and what were the first signs?
2026-04-30 03:46:09
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userrrr :
I hope she finds relief
2026-05-04 00:23:56
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KCtoocrazy :
I hope this pinned posts helps you with the repetitive comments a bit! 💔
2026-04-30 00:21:56
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E25996422 :
It’s going to be really hard to find quality care in relatively small town northern Wisconsin. You have to find a way to get to Madison at the very least.
2026-04-30 01:08:49
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Chelsea :
People are nuts I don’t know how you do it I would lose my cool lol 😂 You crack me up I’ll just pull up to a medical clinic and demand help and not leave until I get it 😂😂🩷 I wish medical care worked like that!! Your doing amazing ❤️🥰
2026-04-30 00:55:19
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Gabrielle 🪼 :
I'm curious if it's at all possible she has potentially plateaued from some of her meds, which would essentially render them "less" effective since she'd had grown a tolerance. But it alsou can be important to rule out underlying sources of pain or discomfort that may not be obvious, especially in those who are nonverbal or have complex needs (things like dental pain, Gl issues (constipation, reflux), otitis, headaches etc etc..It may also be helpful to ensure there's an updated functional behavior assessment to better understand triggers and reinforcement patterns, along with a sort of behavior intervention plan that focuses on teaching and reinforcing replacement communication or coping skills rather than only suppressing the behavior, IF possible. In many cases, increasing access to AAC or other communication supports can make a good difference if frustration or unmet needs are a strong driver. From an OT side of things, sensory regulation supports and environmental adjustments can also sometimes reduce escalation.. depending on what her profile looks like, and coordinated input from neurology, behavioral health, OT, and primary care is often what's needed for complex cases like this. I'm very sorry again, thinking of you during this time.as I said on another one of your posts, please take care of yourself. Caregiver fatigue is a very real thing 💙
2026-04-30 01:12:28
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Tracy :
Do you need help in your home? I'm outside Milwaukee and would come help you however you need! Want a break or run to the store or a date night I can bring my daughter with me to help, she's a certified CNA and last year nursing student. I'm sorry and I can't even imagine how hard this is for you and your family.
2026-06-03 13:50:12
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Baby Face Assassin :
Could Camryn have Ariprozole, catapres or vyvanse ?
2026-05-23 12:00:48
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