@mariana4hd: On the bright side, I have a really stacked resume now... #huntingtonsdisease #life #perspctive #dying #raredisease

Mariana
Mariana
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Thursday 30 April 2026 22:09:24 GMT
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asf01941mdm
andy :
Have you read about the experimental treatment that was performed in the UK? They are calling it the first successful treatment for Huntington’s that can slow progression by 75%. So exciting. Hopefully this will be the breakthrough! Your attitude and outlook on life is so inspiring! Your forgiveness and love for your mother is so inspiring and you may not know it but your story will help others understand the symptoms and repair broken relationships!
2026-05-02 15:43:38
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tintswalo_miss
Tintswalo_thegraced✈️ :
Jesus loves you and I pray that He helps you throughout this life time 💛
2026-05-03 11:31:26
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emilyhbarbour
Emily Barbour :
You are amazing. I previously worked in neuromedical and had the pleasure to spend time with many who had HD. It was always such an incredible disease to me. Seemed to be under studied and represented so, seeing your videos is so encouraging. You are an amazing daughter. God bless you!
2026-05-02 19:49:47
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pr3ttifancy
Drea Lintz :
You have a beautiful kind spirit that shows on how you love your mother. Your prospective is 100% right, cherish every moment. You deserve all the beautiful things life has to offer. Stay strong.
2026-05-03 01:32:21
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ejernyy
Ella :
Thank you for sharing this. I’m not gene positive for HD, but for something else in my family. And I’ve felt a need to change so many things about my health and my life. Things that ultimately won’t change the outcome 💛
2026-05-03 12:37:15
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bobbo6455
bobbip :
🙏🙏🙏you're so inspirational! people without HD need to hear this!!!❣️❣️❣️I love your spirit, shine on sunshine 🌞
2026-05-03 23:17:59
2
joe.bader0
joe bader :
I'm so sorry for your loss. rip mom
2026-06-16 20:57:13
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mtz_famm3
Beccs :
My husband's family has the gene he recently got tested and had a low count. So I pray our 3 daughters are okay too ❤️
2026-05-04 02:07:54
1
s_cmpl
s_cmpl :
Love that you’re spreading awareness and educating on the topic, just a small note on the terminology, its not that you carry the Huntington’s gene, everyone has the HTT gene, you carry a mutation of the gene. Wishing you the best 🥰🥰
2026-05-25 21:55:41
1
lauriebarron765
Laurie Barron 🇨🇦 :
Beautiful message enjoy the ordinary moments. There’s a movie The Peaceful Warrior you might love 🥰
2026-05-27 02:07:02
0
loveasunnyday
Loveasunnyday :
Exactly! Life really isn’t a race.
2026-04-30 23:09:05
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