@theycallmeivyy: putting this out there for the other women who may not have had anyone to speak to about this! #hht #hhtawareness #hereditaryhemorrhagictelangiectasia #women
I had a period for 21 days because of my hht we went to the er and they checked literally everything and said I was fine but I don’t know if I believe them lmao
2026-06-11 21:55:05
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potatopop26 :
I also have Hht
2026-05-08 03:18:05
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rey 🇨🇦 :
I have endometriosis (dx’d via surgery 5 years ago) and I just got diagnosed with HHT. Now I’m wondering how the two things interact and present together 😬
2026-06-26 18:08:12
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y2cali 💿✨📼 :
i’m sure you’ve looked into it but i highlyyyy recommend an IUD. i haven’t had a period/cramps since november 2020. i’m so sorry you deal with this 🥺
2026-05-03 04:22:41
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Bloop___user73891 :
How did you get a diagnosis?
2026-06-09 21:15:46
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Landon Hunt :
my mamaw and mom had to have their female parts removed. and I got tested when I was 30 I bleed out of my mouth nose and spots bust open on my lips.
2026-06-03 11:14:00
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amberly.raelynn 💚 :
I had a craniotomy at age 11. I’m now taking to a OBGYN to get a hysterectomy due to heavy periods, fibroids, and running on a ferritin of 6…
2026-05-21 10:49:05
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Sarah Lou :
i have HHT im in England ive followed u xx
2026-06-19 19:57:59
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Naomi Edwards :
My cramps have been debilitating since I was 10. We discovered my uterine can the first time I got pregnant. Treated with embolization and my periods have been textbook or better ever since!
2026-05-17 04:53:47
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hairbyshanna :
I asked my entire life why my periods were so much and so often. I told my doctor my father carried a blood and they told me no don’t worry about it finally at 45. I was diagnosed through the genetic testing and I didn’t carry HHT. I wish I would’ve advocating for myself more. Now at 50 I wish I would’ve kept pushing the situation. I literally had an ablation done on my waitress because I had a period every two weeks. It will effect your intimacy. Now I’d constantly just have bloody noses and it didn’t start to get worse on my 40s. Good luck!
2026-05-09 15:18:26
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