with my husband it started with drop foot and tripping, then he got fasciculations. as a nurse, I was like ok, this is something neurological, but never thought he'd get diagnosed with ALS. it definitely is different with everyone. proud of you Brook!
2026-05-03 06:07:51
41
Kyle 🌼 Sommer Letter Co. :
“That wasn’t on your pamphlet” 😂😭 your wit and humor are unmatched
2026-05-03 13:13:45
1094
Heather Sterling :
I’m so mad that medical documents say als doesn’t hurt and Brooke is hurting.
2026-05-03 08:53:43
336
BK❤️❤️❤️❤️ :
Best looking sibling in the family. 😂
2026-05-03 06:31:22
300
Angel K :
ALS AND ulcerative colitis?! I’m so sorry :/ you hit the shitty disease jackpot!
2026-05-06 03:50:26
11
Christine aka aunt chrissy :
Brooke, you’ve always managed to brighten my day
2026-05-03 04:53:53
326
Lenduhhh :
THANK YOU! I have muscular dystrophy but they say online it’s painless and I cannot function with the pain. Like who said!? I also have celiac. Stop telling us it’s painless. I love you, Brooke. And family.
2026-05-03 05:18:21
155
ooo :
i also feel like a lot of medical professionals say that als doesn’t affect the brain and that people are locked in but their brain functions perfectly, and that isn’t true for a significant percent of ALS patients! they need to do more research and educate better!
2026-05-03 05:43:53
104
Melanie K :
Brooke needs to make a new effing pamphlet!
2026-05-04 11:07:38
36
Kyla🙏❤️🫶🏻 :
Love you so much Brooke!!! ♥️
2026-05-03 04:34:44
25
Beth :
Thank you for posting and sharing your story. Sending a virtual hug 🤗
2026-05-03 04:39:09
59
laurawearsleggings :
How are you feeling? Not just physically but emotionally too 💜
2026-05-03 12:28:37
22
WhitHappens :
The Disney channel motion at the end. Good job doc!
2026-05-03 11:49:21
21
Mims :
my ALS is painful! I was healthy pain free before so I blame all pain on ALS
2026-05-04 15:16:26
5
anothergiraffe :
The toilet anecdote!
2026-05-03 05:08:21
10
Liz Fay-Olah :
The best looking sister in the family! Brooke, you’re so damn funny 😂😂😂😂
2026-05-03 13:56:33
10
user5620012023660 :
You are such a light Brooke…..the brightest light I’ve ever seen
2026-05-03 16:05:07
7
nonononono :
sisters!!
2026-05-03 04:34:23
23
Sarah B. :
Thank you for answering! And, wow is that important to consider. Especially because I work in critical care so my ALS patients have all lost the ability to speak. I will keep that in my mind moving forward. You are making an impact, Brooke. 💛
2026-05-03 15:06:13
7
Laura :
Thank you for both of your perspective! Mine presented so much like Brooke's been about 4 years. Mostly lower limb.🙏
2026-05-03 09:15:41
5
🔪 :
Brooke, how was it telling the people in your life about the diagnosis? Did you delay telling people?
2026-05-03 06:06:10
9
Susan6forme :
ALS was horribly painful for my husband.
2026-05-03 04:44:44
9
user4822831633093 :
👁️👁️😳 wow and dang!! U also have UC? I am SO sorry
2026-05-03 04:58:15
7
Precious :
“Seeing it on the best looking sibling in the family” I love her humor
2026-05-03 23:47:09
5
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