@chronicallykiera: Complex regional pain syndrome is genuinely the most difficult thing I continue to go through. Fortunately I can still force my ring and pinky fingers straight. Hoping the brace will prevent the fingers from contracting for the meantime until we figure out next steps. The right side of my hand (ulnar nerve) is completely numb from the wrist down, and the CRPS pain is in my wrist. The injury that caused the spread was quite literally the placement of an iv. I'm hoping and praying that we can find a way to reverse the dystonia and hopefully the pain as well 🧡 #raredisease #complexregionalpainsyndrome #crps
CRPS is genuinely hell on earth I’m so sorry you’re going through this too sending so much love and hope that it gets controlled
2026-05-04 04:51:37
40
👻 :
i know that getting medical advice from strangers sucks but just had to hop on and ask if you’ve been evaluated for a tethered cord (urodynamics and an mri sent to a knowledgable surgeon)
2026-05-04 09:49:34
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CherFightsCRPS :
CRPS is horrible it change my life a lot.. Sending hugs 🫂🧡
2026-05-15 08:31:29
1
💘💘brooke💘💘 :
noooooo i’m so sorry :( ❤️🩹
2026-05-04 03:02:49
5
olivia🛸 :
hi got recently diagnosed is this gonna happen to me
2026-06-03 21:58:14
0
S H A N A :
I’m so sorry, sending you so much love and many prayers. 🙏🏽🖤
2026-05-04 11:40:44
2
Emily Kirk :
Im so so sorry sweet girl, sending all the love in the world
2026-05-05 00:17:12
3
Ava :
Love you so much girlie, let me know if you ever need something! I don’t have CRPS, but I do have nerve damage so let me know if you ever wanna talk:)))
2026-05-04 02:39:02
2
camrynlorrainej :
I’m praying for you!
2026-05-04 09:32:27
1
anuška :
Sending prayers 🧡🧡🧡
2026-05-04 06:06:59
1
Sammi☀️ :
I'm so sorry ❤️
2026-05-04 07:52:57
1
bella :
i love you so much ki
2026-05-04 02:43:10
1
syd :
sending my love♥️♥️
2026-05-04 03:07:16
1
Lex ❤︎ :
You got this my girl 💕
2026-05-05 02:06:59
1
Francheska Racelis :
sending so much love kiera 💕
2026-05-04 02:45:57
1
Addeson :
I’m so sorry sweet girl
2026-05-04 02:37:25
1
Dani :
Sending prayers 🙏🏻💖
2026-05-04 02:39:30
1
tay ᥫ᭡ :
I’m so sorry.
2026-05-04 14:54:31
2
cora :
Praying for you ❤️
2026-05-04 04:09:30
1
Ashley :
ugh ki i love u so much
2026-05-04 02:38:54
1
lauren🎗️ :
Keeping you in my prayers sweet girl
2026-05-04 12:10:39
1
alexa 🌞 :
Sending you so much love sweet girl 🩷
2026-05-04 02:58:08
1
hannah :
sending so much love
2026-05-04 02:27:17
1
libby:) :
Sending so much love Ki ❤️
2026-05-04 02:31:11
1
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