Dr. Grace | hEDS, pelvic floor
Region: US
Friday 08 May 2026 01:33:35 GMT
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Kellie C :
What about recent research that shows a correlation between the gene called kallikrein 15 (KLK15) and hEDS?
2026-05-08 12:44:41
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sntqvn :
I had a doctors appointment last week and came in with 6 months of research, 4 decades of symptoms listed for hEDS, dysautonomia and histamine intolerance, my Beighton Scale score (7/9) and that 3 of my cousins have it- and I was abruptly interrupted and told I “just sound depressed and hormonal.”
2026-05-12 06:03:58
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Keep S’myelin :
What does the clinical diagnostic checklist entail?
2026-05-08 02:36:47
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Cindy Fisher73 :
I still haven't found a hack for driving pain in right leg. im in and out of the car so a band around knees isn't feasible
2026-05-08 01:45:51
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sandy0811_v :
so I can get tested if I suspect having vascular eds?
2026-06-12 11:43:54
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Caitlin Montanez 🦓 :
hEDS here and the test for my type is literally a visual test, the dr will have you put your body parts in certain positions, they check how much elasticity you have in your skin and a few other things but the dr is visually checking to diagnose you at least that's what I did with a couple neurologist and 7 rheumatologist
2026-05-12 22:19:12
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lynnann :
Genetically tested and carry a marker. ( my niece has been diagnosed with hEDS. ) Was told they cannot diagnose me because my beighton score is too low. Also told there’s nothing that can be done , no treatment. They never considered all the other sub types and symptoms. Not falling for it -
2026-05-08 12:07:00
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Debbie Passantino :
I was extremely flexible. Weirdly. As a kid I would pop my hips out of joint. I was able to split every way. My daughter suffers from the painful type now. I was never in pain, but I obviously passed this down to her.
2026-05-31 05:04:55
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k3atz :
Yup. I had to push for my hEDS diagnosis because I do not have the typical elbow/knee overextension. Now pushing for genetic testing for the other subtypes because my doctor saying “if you had vEDS you’d be dead so you definitely don’t” just doesn’t give me peace of mind 😭
2026-05-17 15:44:52
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Tirza Hoornstra :
i think i have it. But people around think not. every video i see i think i do have it. bu i am not diagnosed. now i am setting at home because i cannot walk properly, back pain. I did way to much
2026-05-16 11:51:09
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user1164968152556 :
I know I'm hypermobile, but don't know if I have EDS. Honestly just want to know now as 1 I can figure out the best way to cope with my own body and 2, I have a child who is just like me when I was a kid and I want to educate myself for him. On the NHS waiting list
2026-06-01 20:31:10
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Ashley Boring :
Do you have a list of supplements and different perscribed medication that may help?
2026-05-10 10:59:33
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Sea :
the genetic clinic refused me as they don't test EDS types in my area in the UK.
2026-05-10 23:52:49
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MikeWazowski :
I cannot find a rheumatologist in Alberta Canada to get referred to.
2026-05-10 00:43:25
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Ann Coop :
14 there sre 14 subtypes
2026-05-10 13:19:39
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zaza :
Isn’t it 1 in 5000?
2026-05-08 02:06:30
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Cary-Shannon Hayward :
so I have hypermobility but does that mean I'm part of eds
2026-05-08 13:56:12
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Niki :
Syringomyelia? no one has mentioned this part
2026-05-08 13:44:58
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Artemis :
where do i go to get the test?
2026-05-23 16:56:31
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chloe :
hEDS isn’t 1 in 500, that’s misinformation. it’s 1 in 3,100-5,000.
2026-05-08 14:37:28
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