@raisingrareandresilient: If I'm being honest, I read some nasty comments some people had left on my Instagram video about Emma going into anaphylactic shock. The comments didn't bother me but actually inspired me to make this video of her🫶🏼 Before my daughter came into this world, I had never even heard of Early Infantile Galactosialidosis. Now, it’s part of our everyday life. It’s a rare genetic disorder that comes with its own set of challenges—things like hearing loss, delays in development, and physical differences. If you take a moment to really see her, you’ll find a little girl who radiates joy, who loves deeply, and who brings light everywhere she goes. She’s teaching us to slow down, to find joy in the little things, and to love in the purest way. Kids with disabilities don’t show us limitations—they remind us what truly matters. And if you look beyond the diagnosis, you’ll see just how incredible she really is. ✨Follow along as I share Emma's journey-you might leave seeing life a little differently🫶🏼 #EmmaJean #anaphylaxis #hearingloss #godisgood #epipen

Hannah | Medical mom

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Monday 11 May 2026 22:42:19 GMT