Adytum
Region: US
Wednesday 13 May 2026 01:27:49 GMT
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Coco🫶🏻✝️ :
And our souls and bodies are hyper sensitive to the unseen things, for me I am especially sensitive to EMFs and need to move out of the city. Even my phone or laptop keys start to burn my fingers when using extended periods of time. 🔥 📡
2026-08-31 16:58:19
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aurorapezzie :
These + hashimotos, narcolepsy, MTHFR, CCI, PCOS, GERD/LPR, EOE….
2026-05-13 22:27:09
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SherbieSparkles :
me/cfs, audhd, pots, heds, mcas. full house. super happy about it. best incarnation ever. 🥰🥰🥰
2026-06-04 11:54:33
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Caelyn :
I just wanted to clarify that chronic fatigue is the symptom (of many conditions) and ME/CFS (chronic fatigue syndrome) is its own thing. ME/CFS is not the same thing as chronic fatigue! We just try to educate and clear that up because people can start to equate the two which ends up harming our community in the long run💙
2026-05-13 07:53:20
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Alex :
I’m an audhd therapist that see people like me and we are ALL chronically ill. I see this cluster daily.
2026-05-13 19:09:48
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Penelope Pizza Pocket :
for my first 48 years I was just a hypochondriac with wierd medical problems. finally graduated to hEDS, adhd/autism, CF, Fibro, and POTS in my 50s. finally vindicated.
2026-05-14 20:33:16
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beep beep :
Does PCOS(now PMOS) feature in the cluster?
2026-05-14 18:36:17
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Kristinius :
Love the recent focus on this cluster of chronic illnesses, but why do none of the studies investigate possible links to endometriosis?
2026-05-13 16:37:58
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EI :
Thank you for spreading this information -it would be amazing to have one unifying name, so we wouldn’t have to go to 600 different specialists, constantly explain these strange symptoms, and repeatedly not be believed🤝
2026-05-13 06:57:51
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spatulate2 :
It might be up to an Octad. Dr Ilene Ruhoy has talked about it with another doctor Kaufman I think
2026-05-13 02:06:46
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Owl :
diagnosed ADHD, several joints bend in ways they shouldn't (knees, shoulders, fingers, and possibly neck), got random heart rate spikes til I started a low dose beta blocker (had 2 separate EKGs done and they both basically said "well, it's normal just....fast")
2026-05-14 01:33:11
13
𝕵𝖊𝖓𝖓𝖎𝖋𝖊𝖗-𝕱𝖆𝖗𝖒𝖊𝖗 :
why does H1 and H2 blockers paired together, work... like it has been life changing!?
2026-05-13 23:41:23
9
Wheelychey (they/them) :
There was also recently a study that indicates that HEDS or at least some forms of it may actually be related to a mutation on a gene related to mass cells, which can also affect connective tissue, which could indicate that rather than the hypermobility causing the mass cell issue. It’s the mass cell issue, causing a hypermobility and other issues.
2026-05-14 15:49:36
8
princess.andthebear :
It’s probably even higher bc a lot of us can’t get diagnosed because they dismiss us without testing. I have diagnosed adhd and have been saying I have worsening symptoms for these things & I get dismissed bc they say it’s too rare to have it all. Let’s educate drs now.
2026-05-14 12:57:32
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Cool mom, not a regular mom :
I have been frustrated because I noticed this almost a decade ago when my daughter started having symptoms of mcas and then pots. she now has hypemobility, ADHD, Hashimoto's, and more
2026-05-13 18:21:02
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Some guy! :
I’ve been summoned! Hello fellow tired, sore, dizzy people 😁
2026-05-14 08:41:15
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Tce_ :
I'm assuming ME/CFS is also part of this 😬
2026-05-13 19:56:43
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JenJen :
As an autistic person who has gone down this rabbit hole, spending hours connecting the dots, I feel validated.
2026-05-14 16:06:36
14
Nic :
How does one go about getting diagnosed with some of these things? I’m 99% positive I have heds and audhd but I’m not diagnosed and I just got insurance so I can finally start the process but idk where to start.
2026-05-13 07:10:30
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Maggie :
Yep. I have all of the above but throw in MTHFR because it’s related.
2026-05-13 15:41:17
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Sarah Nichole :
😣 great
2026-05-13 01:35:52
5
Car :
I have cEDS and POTS, but I’ve never had COVID! It’s so interesting to me.
2026-06-12 01:52:04
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.kait94 :
Can you elaborate on AGTS?
2026-06-12 00:53:49
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The Stability Project :
I'm attempting to collect people's stories about this exact topic so that we have enough of a pattern to not be ignored, anyone interested there's a link in my bio.
2026-07-10 02:24:46
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